The Diabetes Insipidus Foundation, Inc.
Patient Support and Information
Mary Evans-Lee
3742 Woodland Drive
Columbus, GA 31907
Phone: 706-323-7576
Email: info@diabetesinsipidus.org
Internet: www.diabetesinsipidus.org
The Diabetes Insipidus and Related Disorders Network
535 Echo Court
Saline, MI 48176-1270
Email: gsmayes@aol.com
Internet: web.archive.org/web/20021201133912/members.aol.com/ruudh/dipage1.htm?mtbrand=AOL_US
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: 1-800-999-6673 (voicemail) or 203-744-0100
Email: orphan@rarediseases.org
Internet: www.rarediseases.org
Nephrogenic Diabetes Insipidus Foundation
Main Street
P.O. Box 1390
Eastsound, WA 98245
Phone: 1-888-376-6343
Fax: 1-888-376-6356
Email: info@ndif.org
Internet: www.ndif.org
SOURCE: National Kidney and Urologic Diseases Information
Clearinghouse, National Institutes of Health
Kidney failure can occur from an acute event or a chronic condition or disease. Prerenal kidney failure is caused by blood loss, dehydration, medication. Some of the renal causes of kidney failure are from sepsis, medications, rhabdomyolysis, multiple myeloma, and acute glomerulonephritis. Post renal causes of kidney failure include bladder obstruction, prostate problems, tumors, or kidney stones. Treatment options included diet, medications, or dialysis.
Polycystic ovarian syndrome (PCOS), also known by the name Stein-Leventhal syndrome, is a hormonal problem that causes women to have a variety of symptoms including irregular or no menstrual periods, acne, obesity, and excess hair growth. Treatment of PCOS depends partially on the woman's stage of life and the symptoms of PCOS.
Sickle cell anemia (sickle cell disease), a blood disease which shortens life expectancy, is cause by an inherited abnormal hemoglobin. Symptoms may include bacterial infections, painful swelling of the hands and feet, fever, leg ulcers, fatigue, anemia, eye damage, and lung and heart injury. Treatment for sickle cell anemia aims to manage and prevent the worst manifestations of the disease and focuses on therapies that block red blood cells from stacking together, which can lead to tissue and organ damage and pain.
Pregnancy planning is important to help prevent exposure of the mother and fetus to potentially harmful medications and substances during the early days, and throughout the pregnancy. Nutritional planning, prevention of birth defects, conditions such as high blood pressure, heart disease, diabetes, and kidney disease need careful monitoring. Gestational diabetes, preeclampsia, and pregnancy induced hypertension are conditions that may arise during pregnancy. Immunizations, inherited disorders, exercise, air travel, intercourse, and birth control are important factors to consider when planning a pregnancy.
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