Patient Comments: Neuromyelitis Optica - Treatment

What was the treatment for your neuromyelitis optica?

Comment from: l, 65-74 Male (Patient) Published: September 16

Nearly 3 years post diagnosis of neuromyelitis optica, I have been treated with mycophenolate without success, azathioprine without success, now on CellCept 200 mg in the morning and 150 mg in the evening, plus ongoing prednisolone 75 mg daily, plus a large variety of other medications daily. I have monthly treatment for pneumonia. I'm regularly hospitalized for gentamycin IV for infections.

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Comment from: Longee, 45-54 Female (Patient) Published: October 18

I am now a walking chemist/pharmacy. I am on lots of steroids plus a whole lot of other medication, which I take in the morning, noon, evening and bedtime. I will be under constant monitoring and have to have regular blood tests every two weeks for the time being as one of the medications I am on is an immunosuppressant. Also I'm scheduled to have physiotherapy and water exercises in the pool which I'm excited about.

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Neuromyelitis Optica - Experience Question: Please describe your experience with neuromyelitis optica.
Neuromyelitis Optica - Symptoms Question: What were the symptoms of your neuromyelitis optica?
Neuromyelitis Optica - Prognosis Question: What's the prognosis for your neuromyelitis optica?
Neuromyelitis Optica - Diagnosis Question: How was your neuromyelitis optica diagnosed?

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