Dementia (cont.)

Where can I get more information?

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Information also is available from the following organizations:

Alzheimer's Disease Education and Referral Center (ADEAR)
P.O. Box 8250
Silver Spring, MD 20907-8250
adear@nia.nih.gov
http://www.alzheimers.nia.nih.gov/alzheimers
Tel: 1-800-438-4380
Fax: 301-495-3334

Alzheimer's Association
225 North Michigan Avenue
17th Floor
Chicago, IL 60601-7633
info@alz.org
http://www.alz.org
Tel: 312-335-8700; 1-800-272-3900(24-hour helpline) TDD: 312-335-5886
Fax: 866.699.1246

Alzheimer's Foundation of America
322 Eighth Avenue
7th Floor
New York, NY 10001
info@alzfdn.org
http://www.alzfdn.org
Tel: 866-AFA-8484 (232-8484)
Fax: 646-638-1546

John Douglas French Alzheimer's Foundation
11620 Wilshire Blvd.
Suite 270
Los Angeles, CA 90025
jdfaf@earthlink.net
http://www.jdfaf.org
Tel: 310-445-4650
Fax: 310-479-0516

Association for Frontotemporal Dementias (AFTD)
Radnor Station Building #2 Suite 320
290 King of Prussia Road
Radmpr, PA 19087
info@theaftd.org
http://www.theaftd.org
Tel: 267-514-7221 866-507-7222

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT 06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Family Caregiver Alliance/ National Center on Caregiving
785 Market St.
Suite 750
San Francisco, CA 94104
info@caregiver.org
http://www.caregiver.org
Tel: 415-434-3388 800-445-8106
Fax: 415-434-3508

National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS
6001 Executive Blvd. Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
nimhinfo@nih.gov
http://www.nimh.nih.gov
Tel: 301-443-4513/866-415-8051; 301-443-8431 (TTY)
Fax: 301-443-4279

National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD 20895-3944
info@thefamilycaregiver.org
http://www.thefamilycaregiver.org
Tel: 800-896-3650
Fax: 301-942-2302

Lewy Body Dementia Association
912 Killian Hill Road, S.W.
Lilbum, GA 30047
lbda@lbda.org
http://www.llbda.org
Tel: 404-935-6444; LBD Caregiver Link: 800-539-9767
Fax: 480-422-5434

Alzheimer's Drug Discovery Foundation
57 West 57th Street
Suite 904
New York, NY 10019
info@alzdiscovery.org
http://www.alzdiscovery.org
Tel: 212-901-8000
Fax: 212-901-8010

Creutzfeldt-Jakob Disease (CJD) Foundation Inc.
P.O. Box 5312
Akron, OH 44334
help@cjdfoundation.org
http://www.cjdfoundation.org
Tel: 800-659-1991
Fax: 330-668-2474

CJD Aware!
2527 South Carrollton Ave.
New Orleans, LA 70118-3013
cjdaware@iwon.com; info@cjdaware.com
http://www.cjdaware.com
Tel: 504-861-4627

Well Spouse Association
63 West Main Street
Suite H
Freehold, NJ 07728
info@wellspouse.org
http://www.wellspouse.org
Tel: 800-838-0879; 732-577-8899
Fax: 732-577-8644

National Respite Network and Resource Center
800 Eastowne Drive
Suite 105
Chapel Hill, NC 27514
http://www.archrespite.org
Tel: 919-490-5577 x222
Fax: 919-490-4905

American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
info@ahaf.org
http://www.ahaf.or/alzheimersg
Tel: 301-948-3244; 800-437-AHAF (2423)
Fax: 301-258-9454

National Hospice and Palliative Care Organization/Natl. Hospice Foundation
1731 King Street
Suite 625
Alexandria, VA 22314
info@nhpco.org
http://www.nhpco.org
Tel: 703-837-1500 Helpline: 800-658-8898
Fax: 703-837-1233

SOURCE: National Institute of Neurological Disorders and Stroke, National Institutes of Health. Dementia: Hope Through Research.
<http://www.ninds.nih.gov/disorders/dementias/detail_dementia.htm>


Last Editorial Review: 5/16/2012


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