Dementia (cont.)
Where can I get more information?
For more information on neurological disorders or research programs funded by
the National Institute of Neurological Disorders and Stroke, contact the
Institute's Brain Resources and Information Network (BRAIN) at:
BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov
Information also is available from the following organizations:
Alzheimer's Disease Education and Referral Center (ADEAR)
P.O. Box 8250
Silver Spring, MD 20907-8250
adear@nia.nih.gov
http://www.alzheimers.nia.nih.gov
Tel: 301-495-3311 800-438-4380
Fax: 301-495-3334
Alzheimer's Association
225 North Michigan Avenue
17th Floor
Chicago, IL 60601-7633
info@alz.org
http://www.alz.org
Tel: 312-335-8700 TDD: 312-335-5886
Fax: 866.699.1246
National voluntary health organization committed to finding a cure for
Alzheimer's and helping those affected by the disease.
Alzheimer's Foundation of America
322 Eighth Avenue
7th Floor
New York, NY 10001
info@alzfdn.org
http://www.alzfdn.org
Tel: 866-AFA-8484 (232-8484)
Fax: 646-638-1546
Works to provide optimal care and services to individuals confronting
dementia and to their caregivers and families thruogh member organizations
dedicated to improving quality of life.
John Douglas French Alzheimer's Foundation
11620 Wilshire Blvd.
Suite 270
Los Angeles, CA 90025
jdfaf@earthlink.net
http://www.jdfaf.org
Tel: 310-445-4650 800-477-2243
Fax: 310-479-0516
Generates funds for Alzheimer's research targeted at areas of research
typically not supported by Federal agencies.
Association for Frontotemporal Dementias (AFTD)
100 North 17th Street
Suite 600
Philadelphia, PA 19103
info@FTD-Picks.org
http://www.FTD-Picks.org
Tel: 267-514-7221 866-507-7222
Non-profit organization that promotes and funds research into finding the
cause and cure for frontotemporal dementias (FTD); provides information,
education, and support to those affected by FTD and their caregivers; and
sponsors professional health education programs related to FTD.
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Federation of voluntary health organizations dedicated to helping people with
rare "orphan" diseases and assisting the organizations that serve them.
Committed to the identification, treatment, and cure of rare disorders through
programs of education, advocacy, research, and service.
Family Caregiver Alliance/ National Center on Caregiving
180 Montgomery Street
Suite 1100
San Francisco, CA 94104
info@caregiver.org
http://www.caregiver.org
Tel: 415-434-3388 800-445-8106
Fax: 415-434-3508
Supports and assists families and caregivers of adults with debilitating
health conditions. Offers programs and consultation on caregiving issues at
local, state, and national levels. Offers free publications and support online,
including a national directory of publicly funded caregiver support programs.
C-Mac Informational Services/Caregiver News [For Alzheimer's-Type Dementia
Caregivers]
120 Clinton Lane
Cookeville, TN 38501-8946
caregiver_cmi@hotmail.com
http://www.caregivernews.org
Nonprofit, tax-exempt, charitable organization that offers information about
care for patients with Alzheimer's-type dementia. Publishes and distributes a
newsletter, cookbook, and the Caregiver's Information Pack.
National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS
6001 Executive Blvd. Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
nimhinfo@nih.gov
http://www.nimh.nih.gov
Tel: 301-443-4513/866-615-NIMH (-6464) 301-443-8431 (TTY)
Fax: 301-443-4279
National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD 20895-3944
info@thefamilycaregiver.org
http://www.thefamilycaregiver.org
Tel: 301-942-6430 800-896-3650
Fax: 301-942-2302
Grassroots organization dedicated to supporting and improving the lives of
America's family caregivers. Created to educate, support, empower, and advocate
for the millions of Americans who care for their ill, aged, or disabled loved
ones.
Lewy Body Dementia Association
P.O. Box 451429
Atlanta, GA 31145-9429
lbda@lbda.org
http://www.lewybodydementia.org
Tel: 404-935-6444 800-LEWYSOS (539-9767)
Fax: 480-422-5434
Supports those affected by Lewy body dementias and promotes research for a
cure. Sponsors education and outreach programs.
Alzheimer's Drug Discovery Foundation (formerly, Institute for the Study of
Aging)
1414 Avenue of the Americas
Suite 1502
New York, NY 10019
hfillit@alzdiscovery.org
http://www.alzdiscovery.org
Tel: 212-935-2402
Fax: 212-935-2408
Public charity whose mission is to accelerate the discovery and development
of drugs to prevent, treat, and cure Alzheimer's disease, related dementias, and
cognitive aging.
Creutzfeldt-Jakob Disease (CJD) Foundation Inc.
P.O. Box 5312
Akron, OH 44334
help@cjdfoundation.org
http://www.cjdfoundation.org
Tel: 800-659-1991
Fax: 330-668-2474
Non-profit, volunteer foundation that promotes research, education, and
awareness of CJD and reaches out to people affected by CJD.
CJD Aware!
2527 South Carrollton Ave.
New Orleans, LA 70118-3013
cjdaware@iwon.com; info@cjdaware.com
http://www.cjdaware.com
Tel: 504-861-4627
Non-profit organization established for support, information sharing, and
advocacy.
Well Spouse Association
63 West Main Street
Suite H
Freehold, NJ 07728
info@wellspouse.org
http://www.wellspouse.org
Tel: 800-838-0879 732-577-8899
Fax: 732-577-8644
International non-profit organization whose mission is to provide emotional
support to, raise consciousness about, and advocate for the spouses/partners and
children of the chronically ill and/or disabled.
National Respite Network and Resource Center
800 Eastowne Drive
Suite 105
Chapel Hill, NC 27514
http://www.archrespite.org
Tel: 919-490-5577 x222
Fax: 919-490-4905
Information and referral service that assists and promotes the development of
quality respite and crisis care programs; helps families locate respite and
crisis care services in their communities; and sponsors advocacy and awareness
efforts concerning respite care.
American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
info@ahaf.org
http://www.ahaf.org
Tel: 301-948-3244 800-437-AHAF (2423)
Fax: 301-258-9454
Non-profit charitable organization dedicated to funding research and
educating the public on Alzheimer's disease, glaucoma, macular degeneration,
heart disease, and stroke. Provides emergency financial assistance to
Alzheimer's disease patients and their caregivers.
National Hospice and Palliative Care Organization /Natl. Hospice Foundation
1700 Diagonal Road
Suite 625
Alexandria, VA 22314
nhpco_info@nhpco.org
http://www.nhpco.org
Tel: 703-837-1500 Helpline: 800-658-8898
Fax: 703-837-1233
Non-profit membership organization representing hospice and palliative care
programs and professionals. Provides free referrals to the public for hospice
listings across the United States and internationally. Distributes free packets
of general information describing hospice services and the Medicare Hospice
Benefit.
SOURCE: National Institute of Neurological Disorders and Stroke, National Institutes of Health
Last Editorial Review: 5/8/2008
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