Patient Comments: Deep Vein Thrombosis - Diagnosis

How was your deep vein thrombosis diagnosed?

Comment from: BettyCrockster, 55-64 Female (Patient) Published: June 03

My background is that I'm an ordinary worker (60 plus hours a week). I woke up one morning in so much overall body pain that I couldn't move, and very cold. I finally made it to the couch, I was swaying back and forth because I was so cold. Then my body temperature went to 'freezing' mode and I started convulsing. I remember grabbing my heart, the pain was unbearable. I stayed like that for 5 days until I was able to drive to work. I thought I had bronchitis or something. I then drove to the clinic and was diagnosed with a heart attack and he directed me to go straight to the hospital. Ambulance service was refused by me. They did blood tests and a CAT scan of my body. They had diagnosed me with pulmonary embolism and pneumonia. I stayed in the hospital for 6 days. My INR was never right but they let me go home due to lack of insurance. Due to lack of insurance I had to stop all treatment after 3 weeks. I am now wondering if the deep vein thrombosis is still there. I know shortness of breath is a concern and I seem to have that.

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Comment from: BO didlee, 55-64 Male (Patient) Published: February 17

I had no symptoms of deep vein thrombosis and was only diagnosed by a sonogram for something else. I had portal vein thrombosis.

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Comment from: Trooparun, 35-44 Male (Patient) Published: November 14

I had painless swelling on my ankles and feet. I thought it would be normal due to my running sessions. However, it was pointed out by my wife that it does not seem normal and requires attention. The doctor prescribed a number of tests including kidney and heart functioning tests. All of the tests were normal and it was then that she linked it to smoking and coagulation if the blood.

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Comment from: kitty, 45-54 Female (Patient) Published: August 24

When I was 39 I sprained my ankle and dislocated a toe. I was told to do bed rest and elevate the ankle. One week after the sprain I started experiencing a lot of pain. I couldn't put pressure on my foot, anything that touches my leg I had a lot of pain and there was a lot of swelling. I went to the er again and told them about the symptoms, I was having and I was told what can you expect you dislocated your toe and sprained your ankle. Again I went back two days later as I couldn't take the pain anymore and there was a red line in front of my leg. Again I was told in the er that I was not doing bed rest etc. I refuse to leave and I told them they had to figure out what was wrong. They looked at me as if I was crazy. Another doctor was called a doppler was ordered they found 2 clots behind my calf. I was in hosp for over one week and 11 years later I still take meds. My leg was swollen for over 6 months. So if you feel that something is not correct. Don't stop until you get an answer.

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Comment from: NJ, 65-74 Female Published: May 14

I was diagnosed with DVT quite accidentally. I had vein work done in late summer 2011 and returned for my last follow-up appointment on March 5, 2012. The technician doing an ultra-sound on the leg where I had the vein work done "discovered" that I had DVT. Two weeks prior to that visit, I traveled by car from FL to my home in MD--7 1/2 hours in a small car with a couple of stops for gasoline and to have breakfast and lunch. I spent 7 hours in the emergency room on March 5 where it was determined that no clots had broken loose and put on lovonox and coumadin. I have also had heavy dose chemotherapy for BC metastasis.

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Comment from: BettyCrockster, 55-64 Female (Patient) Published: June 02

I was diagnosed with PE (pulmonary embolism) and hospitalized 6 months ago. I could only afford my Coumadin for 3 weeks. I don't know if the clot is still in my lung. I can't afford doctor visits to ask them.

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Patient Comments

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Deep Vein Thrombosis - Symptoms Question: For deep vein thrombosis, what were the symptoms and signs you experienced?
Deep Vein Thrombosis - Treatment Question: What kinds of treatment, including medication, did you receive for deep vein thrombosis?
Deep Vein Thrombosis - Prevention Question: In what ways do you try to prevent a recurrence of deep vein thrombosis?
Deep Vein Thrombosis - Possible Causes Question: Were you pregnant or did you sit on a plane for a long time? What was the cause of your deep vein thrombosis?

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