Patient Comments: Deep Vein Thrombosis - Diagnosis

How was your deep vein thrombosis diagnosed?

Comment from: chartroomgirl, 45-54 Female (Patient) Published: May 03

My DVT is unusual it is my upper extremity it's in my left forearm it was diagnosed with a ultra sound after two D-dimer test came back negative. Thank goodness for the persistence of the urgent care doctors my sibling died from a pulmonary embolism at the same age I am now.

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Comment from: Female (Patient) Published: April 28

My DVT was diagnosed through an ultrasound. The only symptom I had was severe pain in leg and I couldn't put my weight on it. I was hospitalize and was given lovenox shots and a warfarin pill.

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Comment from: mbrewer, 55-64 Female (Patient) Published: April 14

I was hospitalized in Jan 2011 for a Pulmonary Emboli and nearly died. I was unaware of what was happening until the lab work came back and said I had a D-Dimer of 1964; > 200. I also had a CT of body and numerous clots were found with several in the lungs as well. The doctor told me in the ER that I had the DVT in my left leg for at least a month. I actually had no symptoms other than swelling in the leg, yet I do have large legs anyway. I walked a lot and don't drive a car. Prior to this, I had SOB and severe fatigue. I had told my DR about it, but nothing was done until the clot in my leg broke and went to my lungs. I now have to be on Coumadin for the rest of my life.

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Comment from: Pabi, 25-34 Female Published: February 22

I was diagnosed with deep vein thrombosis when I was 6 months pregnant and I was on clexane until the day before I went for my caeserian section. A doppler scan was done before I was discharged from the hospital. It was concluded that what I had was DVT in pregnancy cause I was okay two months later until now. Though, I'm scared to get pregnant again...

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Comment from: les, 45-54 Female (Patient) Published: February 17

I am 50 years old. I woke up one morning with right ankle pain and swelling. I thought I must have twisted my ankle at the gym. Pain increased and I decided to see my PMD. There was a possibility that this was gout due to Hydrochlorothiazide use. Pain and swelling increased. Several weeks later a Dopler of both my legs was negative for clots. Subsequently, had an MRA, MRV, Stress test Echo. I was evaluated by several physicians. Then one day woke up with shortness of breath, coughing with bloody mucus. Went to ER and was told that I probably had pneumonia with a panic episode. One week later went to another ER with same symptoms. A CT with contrast showed I had extensive Bilateral PE and multiple clots in both legs. I was immediately started on Heparin and spend 2 days in ICU. Sent home 5 days later on Arixtra and Coumadin until my level was therapeutic. Then just coumadin. This was short lived. 3 weeks later my leg pain returned and dopler revealed new clots. I was considered failed Coumadin and put on Arixtra shots daily. 1 month later develop shortness of breath again, and had 2 right lung PE and 1 on the left with more DVT. A Greenfield filter was placed. Now I am on Levonox twice daily. Still with no definite diagnosis for the DVT. I continue to be hopeful. But one advice when you feel something that is not normal, continue to ask and tell your physician. You are the expert on your body.

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Comment from: Mams, 35-44 Male (Patient) Published: February 14

I was diagnosed chronic dvt as I used IV drugs in my leg veins. I have kicked the habit for almost 10 years. Now I'm able to walk but my thigh cramps when I walk stairs.

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Comment from: Worried mum, 13-18 Female (Caregiver) Published: January 27

My 18 year old daughter has recently had a blood transfusion because of anemia. Then the day after she had bad pain in her groin. She was told that it was a muscle strain. Two weeks later after being in awful pain we went to another hospital and were told that the Deep Vein Thrombosis was extensive. She was on Heparin for 3 months but still has pain/some swelling in her leg six months later.

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Patient Comments

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Deep Vein Thrombosis - Symptoms Question: For deep vein thrombosis, what were the symptoms and signs you experienced?
Deep Vein Thrombosis - Treatment Question: What kinds of treatment, including medication, did you receive for deep vein thrombosis?
Deep Vein Thrombosis - Prevention Question: In what ways do you try to prevent a recurrence of deep vein thrombosis?
Deep Vein Thrombosis - Possible Causes Question: Were you pregnant or did you sit on a plane for a long time? What was the cause of your deep vein thrombosis?

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