A friend of mine recently passed away due to an infection in her blood stream. She was in the hospital being treated for malnutrition brought on by her cystic fibrosis. Her older sister, who has CF as well, recently received a lung transplant just after graduating from high school. It was extremely difficult to watch someone who was younger than me, and who had a full life ahead of her, pass away. I am currently in college working to receive my nursing degree, and she will remain in my heart as my motivation for the rest of my life.

My girlfriend has cystic fibrosis and 3 weeks ago suffered a collapsed lung. She was treated with 1 tube then 2 tubes in the chest as the 1 wasn't working. After another week she had an x-ray and the doctor said he feared her lung would collapse again if they removed the tubes so they decided to operate. The next day she went and had the operation and then was put on a ventilator for the next 48 hours. In that time she caught pneumonia. After 5 days of antibiotics I was told she was making improvements and getting stronger but then 2 days later was informed that the antibiotics had stopped working and to expect the worst. However now she has been put on a higher and stronger dosage of antibiotics and has been told it is clearing the infection. However I'm still extremely worried as I was told before she was improving.

My mother is 49 and just last week was told she has cystic fibrosis and that she will need a lung transplant. My mother has battled for many years with RA and has had many tests done. I've been curious during this week of finding out how after all the tests and x-rays my mother has had just in the past year, how no one noticed it. I'm worried of losing my mother. Last fall she was in the hospital for 2 weeks with the swine flu that almost took her from us. How could something like this be missed after all she is 49 years old. I've read and researched and listened to doctors say it was RA causing the cystic fibrosis, but what I've learned in research in the past week says it's inherited. The doctor says lung transplant and I'm curious how long is that list, will she live long enough to get one as a mother and a daughter I have to admit I've cried myself to sleep, I've cried everyday and I freaked out when my mom told me the bad news thankfully she told me while I was home on the phone with her instead of at the hospital with her. I refuse to let my mom see how worried I am for her.

My grandson was diagnosed with CF at birth he is now eleven months old. He is on enzymes, micro lipids and has four breathing treatments a day when he eats his stomach swells and has to be given MiraLax. His breathing is very rapid and his mucus is very thick it is a daily struggle to keep him well!

I am a 19 year old student who has been recently diagnosed with cystic fibrosis and also type 2 diabetes because I have cf. I have only told close relations because I find it hard telling people as I feel very self conscious with my diagnosis. I've learned to accept it but I'm just afraid of what people's reactions will be if I ever let it go public. The cf I can handle but the diabetes is tough. I'm off sweets and fizzy drinks and yet sometimes it is still high.

My 16 year old granddaughter has been treated for asthma since she was an infant, we were recently, last week, told she has signs and symptoms of cystic fibrosis. She is presently in the hospital with a severe lung and kidney infection and is in a lot of pain. The doctors will not give her more than liquid codeine and that isn't helping her. She is quite short but isn't underweight, she has been treated for another condition also and that medication makes people at risk of obesity, so she looks overweight for her height, but is not obese yet. I am very worried about her.

I live in Dominican Republic. I was diagnosed with Cystic Fibrosis at the age of 6. Here in my country, there aren't any doctors who are specialized in the disease, so I have to go every 3 to 6 months to the USA to get checked. I have to admit that living with CF isn't easy, but talking with others that have it can help you a lot. Another thing that had helped me is staying positive. If you think positive, positive things would happen to you.