Comment from: holdingonforhope, 13-18 Female (Caregiver)Published: October 27
A friend of mine recently passed away due to an infection in her blood stream. She was in the hospital being treated for malnutrition brought on by her cystic fibrosis. Her older sister, who has CF as well, recently received a lung transplant just after graduating from high school. It was extremely difficult to watch someone who was younger than me, and who had a full life ahead of her, pass away. I am currently in college working to receive my nursing degree, and she will remain in my heart as my motivation for the rest of my life.
Comment from: djnutz82, 19-24 Male (Caregiver)Published: June 28
My girlfriend has cystic fibrosis and 3 weeks ago suffered a collapsed lung. She was treated with 1 tube then 2 tubes in the chest as the 1 wasn't working. After another week she had an x-ray and the doctor said he feared her lung would collapse again if they removed the tubes so they decided to operate. The next day she went and had the operation and then was put on a ventilator for the next 48 hours. In that time she caught pneumonia. After 5 days of antibiotics I was told she was making improvements and getting stronger but then 2 days later was informed that the antibiotics had stopped working and to expect the worst. However now she has been put on a higher and stronger dosage of antibiotics and has been told it is clearing the infection. However I'm still extremely worried as I was told before she was improving.
Comment from: dragonfly, 45-54 Female (Caregiver)Published: May 21
My mother is 49 and just last week was told she has cystic fibrosis and that she will need a lung transplant. My mother has battled for many years with RA and has had many tests done. I've been curious during this week of finding out how after all the tests and x-rays my mother has had just in the past year, how no one noticed it. I'm worried of losing my mother. Last fall she was in the hospital for 2 weeks with the swine flu that almost took her from us. How could something like this be missed after all she is 49 years old. I've read and researched and listened to doctors say it was RA causing the cystic fibrosis, but what I've learned in research in the past week says it's inherited. The doctor says lung transplant and I'm curious how long is that list, will she live long enough to get one as a mother and a daughter I have to admit I've cried myself to sleep, I've cried everyday and I freaked out when my mom told me the bad news thankfully she told me while I was home on the phone with her instead of at the hospital with her. I refuse to let my mom see how worried I am for her.
Comment from: Nana, 0-2 Male (Patient)Published: August 17
My grandson was diagnosed with CF at birth he is now eleven months old. He is on enzymes, micro lipids and has four breathing treatments a day when he eats his stomach swells and has to be given MiraLax. His breathing is very rapid and his mucus is very thick it is a daily struggle to keep him well!
Comment from: SPE96, 13-18 Female (Patient)Published: April 05
I live in Dominican Republic. I was diagnosed with Cystic Fibrosis at the age of 6. Here in my country, there aren't any doctors who are specialized in the disease, so I have to go every 3 to 6 months to the USA to get checked. I have to admit that living with CF isn't easy, but talking with others that have it can help you a lot. Another thing that had helped me is staying positive. If you think positive, positive things would happen to you.
Comment from: dsd334, 45-54 Female (Patient)Published: April 26
I am a 46-year-old female patient. I was diagnosed at 19 months old. I do well for the most part, however, my regular cystic fibrosis doctor passed away a couple of months ago, and I am seeing a new doctor that has changed a lot of my medicine, so I am not doing as well as I have in the past. Please get with a doctor that is knowledgeable about CF, will treat lung infections aggressively and treats the whole body, not just the lungs.
Comment from: mandygurl, 7-12 Female (Caregiver)Published: July 11
My nine year old sister has cystic fibrosis, and it's extremely hard to watch her daily suffer. She needs to take over thirty pills a day, and could swallow huge pills by the time she was 2 1/2. She has to go through two nebulizer treatments per day, physical therapy, and more. It takes a lot of time, attention, patience, frustration, and more. I recently participated in CF Teen Advocacy Day, and want nothing more than a cure to be found. I can't bear the thought that my little sister is going to die before me, and might never be able to have a family of her own.
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Suggested Reading on Cystic Fibrosis by Our Doctors
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Heat exhaustion is one part of the spectrum of
heat-related illnesses that
include, heat cramps, heat exhaustion, and
heat stroke.
The body cools itself by sweating and allowing that sweat to evaporate. This
requires enough fluid in the body to make sweat, air circulating across the skin,
and low air humidity to allow that sweat to evaporate.
Activity in a hot environment can overwhelm the body's ability to cool
itself, causing heat-related symptoms.
Symptoms of heat exhaustion include profuse sweating,
weakness,
nausea,
vomiting,
headache, lightheadedness, and
muscle cramps.
Heat exhaustion can progress to heat stroke when the body's temperature
regulation fails. The affected individual becomes confused, lethargic and may
have a seizure, the
skin stops sweating and the body temperature may exceed 106 F (41 C ). This is a
life-threatening condition and emergency me...
A friend of mine recently passed away due to an infection in her blood stream. She was in the hospital being treated for malnutrition brought on by her cystic fibrosis. Her older sister, who has CF as well, recently received a lung transplant just after graduating from high school. It was extremely difficult to watch someone who was younger than me, and who had a full life ahead of her, pass away. I am currently in college working to receive my nursing degree, and she will remain in my heart as my motivation for the rest of my life.
Related Reading: cystic fibrosis