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Patient Discussions: Cystic Fibrosis - Describe Your Experience

Cystic Fibrosis - Describe Your Experience

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Please describe your experience with cystic fibrosis.

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The following Patient Discussions have not been medically reviewed. See additional information.



Comment from: Nana, 0-2 Male (Patient)

My grandson was diagnosed with CF at birth he is now eleven months old. He is on enzymes, micro lipids and has four breathing treatments a day when he eats his stomach swells and has to be given MiraLax. His breathing is very rapid and his mucus is very thick it is a daily struggle to keep him well! Published: August 17 ::

Comment from: donya, 25-34 Female (Patient)

Thanks for this information. I am a 25 years old female from Saudi Arabia diagnosed with mild cystic fibrosis since I was 5 years old. I am now on creaon enzymes, a Symbicort inhaler and I frequently use antibiotics for my chest infection. I work as nurse in pediatric oncology. My problem that I have now is with frequent abdominal pain in the epigastric area. I have had blood tests and they found high level enzyme level s. My doctor said cystic fibrosis may affect your liver. Published: November 19 ::


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