Patient Comments: Crohn's Disease - Symptoms

The symptoms of Crohn's disease can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Published: July 23

My son was diagnosed 3 months ago, but he was sick for 6 months before. He complained with a stomach ache and I would take him to the doctor and he would say it's a virus and give him antibiotics. Soon he had missed so much school that I had to get something done. (He really does not like school so I thought he was faking at first.)He had diarrhea and abdominal pain but no fever, but the g.i. doctor did a CT scan for appendicitis and ended up with a diagnosis of Crohn's.

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Published: July 21

I was in my early 40s (now mid 60s) when I began to have a lot of diarrhea, which was getting me up in the middle of the night. I simply felt unwell with a low grade fever. I rarely had stomach aches, but I had so much pain in my groin that I couldn't walk. I was diagnosed by colonoscopy. I have never had surgery and tried almost every medication known to doctors. My most significant complaint, besides the frequent trips to the bathroom with loose stools, is joint pain, especially around my ribs, sternum and collar bone. Remicade was a miracle drug for those pains and the groin pain but it stopped working after a while: I would be barely able to walk into the hospital to get the infusion and would feel great leaving two hours later. I am thinking of going back onto Entocort because I have not been feeling well recently. I know my Crohn's path is unusual, but I hope this helps someone.

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Published: July 16

At the onset of the disease I had bloody stools, pain in my abdomen, fatigue and I craved ice. I was 11 years old when I was taken to the hospital and from that point on I was hospitalized each year for approx 20 days or more with relapse until I was 21. I am now 40 years old and since my surgery in 1989 I have pretty much been symptom free.

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Published: July 14

My wife and I went into the hospital for what we thought was her appendix. After her CT scan it showed she had a perforated small intestine. She was transferred to a different hospital to have a bowel resection done. They removed a total of 27 inches of her small intestine and also her appendix. She was then diagnosed with Crohn's. Before we went to hospital she had complained of stomach pains and had diarrhea. The doctor said by the severity of the Crohn's she had been sick for probably for over a year. Word of advice, if you have constant symptoms, please see your doctor immediately. For now my wife and I start our new journey with a new disease.

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Published: July 14

I am having soft/thin stools for many years, precisely for 10 to 15 years. Must be due to obstruction to feces in rectum or obstruction in small intestines, not much abdominal pain, but 4 to 5 stools everyday. Never hard, thick, or normal stools. But mysterious thing about me is when I have no seminal emissions for few days, my stools get improved. Though there is no scientific connection between these 2, my practical experience suggests something else. Also when I took herbal medicines to harden my soft stools, my semen also gets thicker.

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Published: July 07

My six-teen year old daughter was diagnosed with Crohn's Disease last week and fear filled my body immediately. We took her to the doctor due to her finding blood from her anus after using the restroom. She has not yet experienced any pain due to the disease; however, the doctor told us that it is in its early stage at this time. She does experience back pain on her spine and we are in the process of having that checked out as well. I read that Crohn's disease affects the spine also.

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Published: July 07

I have suffered with Crohn's disease since pre-teen ages. I finally discovered a name for my condition at 60. I have discovered a way to put my condition on hold long enough to fly cross country, and go to the grocery store with out worrying about a mishap in public. This is what has worked for me, and if it helps anyone not be 100% house bound, then it's worth my sharing this with you. I take a Vicodin 500 MG and within an hour the diarrhea will subside, and prevent a mishaps for at least 10 to 12 hours. It works so well for me that I use this process sparingly as I don't want to dilute the effectiveness by using it daily. Also, I am told this pain medication can become addictive. I don't want that either so, I am cautious.

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Patient Comments

Viewers share their comments

Crohn's Disease - Diet Question: What diet changes did you have to make, or continue to make to control the symptoms of your Crohn's disease?
Crohn's Disease - Treatment Question: Describe the various kinds of treatment you've had for Crohn's disease.
Crohn's Disease - Medications Question: What medications have you taken for Crohn's disease? Have any of them helped with symptoms?

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