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November 23, 2009
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Patient Discussions: Crohn's Disease - Symptoms at Onset of Disease

Crohn's Disease - Symptoms at Onset of Disease

The MedicineNet physician editors ask:

The symptoms of crohn's disease can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

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Related Article: Crohn's Disease

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I was 18 years old and had extreme stomach pain. I went to my doctor and had a fever that I was unaware of. They sent me to the hospital to have my appendix removed. After the surgery the surgeon told my parents that he just removed a perfectly healthy appendix and that I had Crohn's disease. At that time they removed 18 inches of my intestine. I lost a tremendous amount of weight and have be thin since. My main problem since then, I am now 39 years old is the inability to move my bowels, just the opposite of what I have heard other patients have. I have been hospitalized since, thank god no more surgeries for Crohn's. I recently had a hernia removed, which I was told could have been from straining all these years. I was also in the hospital for five days for what was supposed to be an outpatient procedure because the hernia was so large and there were many lymph nodes that needed to be removed. Published: May 27 ::

I was recently diagnosed with Crohn's Disease at the age 17. One morning at school I felt as if I was cramping but the pain increased tremendously so then I thought it was a gas bubble. Within seconds I was bent over, pants un-buttoned, crying in severe pain. I was taken to the hospital and at first they thought I needed my appendix taken out but that was negative so they did many tests on me before I was sent home and saw that my small intestines was inflamed. I was sent to a GI doctor and found that I had the symptoms of Crohn's and after drinking Barium (the worst taste EVER!) and more tests I was then diagnosed with an early part of Crohn's. I am now taking Pentasa and Entocort EC and so far every once in awhile I get stomach pains and often soft stool but I’m still living life to the fullest. Published: July 23 ::

Pain started a week ago, and comes in waves, like labor pain, on righthand side, and deep where ovary used to be. I have nausea and weak legs. I am too scared now to eat at all. The pain goes round now to behind right hip. Loose bowels and the feeling that my insides are being twisted. Published: July 24 ::

My son was diagnosed 3 months ago, but he was sick for 6 months before. He complained with a stomach ache and I would take him to the doctor and he would say it’s a virus and give him antibiotics. Soon he had missed so much school that I had to get something done. (He really does not like school so I thought he was faking at first.)He had diarrhea and abdominal pain but no fever, but the g.i. doctor did a CT scan for appendicitis and ended up with a diagnosis of Crohn’s. Published: July 23 ::

I was in my early 40s (now mid 60s) when I began to have a lot of diarrhea, which was getting me up in the middle of the night. I simply felt unwell with a low grade fever. I rarely had stomach aches, but I had so much pain in my groin that I couldn’t walk. I was diagnosed by colonoscopy. I have never had surgery and tried almost every medication known to doctors. My most significant complaint, besides the frequent trips to the bathroom with loose stools, is joint pain, especially around my ribs, sternum and collar bone. Remicade was a miracle drug for those pains and the groin pain but it stopped working after a while: I would be barely able to walk into the hospital to get the infusion and would feel great leaving two hours later. I am thinking of going back onto Entocort because I have not been feeling well recently. I know my Crohn's path is unusual, but I hope this helps someone. Published: July 21 ::

At the onset of the disease I had bloody stools, pain in my abdomen, fatigue and I craved ice. I was 11 years old when I was taken to the hospital and from that point on I was hospitalized each year for approx 20 days or more with relapse until I was 21. I am now 40 years old and since my surgery in 1989 I have pretty much been symptom free. Published: July 16 ::

My wife and I went into the hospital for what we thought was her appendix. After her CT scan it showed she had a perforated small intestine. She was transferred to a different hospital to have a bowel resection done. They removed a total of 27 inches of her small intestine and also her appendix. She was then diagnosed with Crohn's. Before we went to hospital she had complained of stomach pains and had diarrhea. The doctor said by the severity of the Crohn's she had been sick for probably for over a year. Word of advice, if you have constant symptoms, please see your doctor immediately. For now my wife and I start our new journey with a new disease. Published: July 14 ::

I am having soft/thin stools for many years, precisely for 10 to 15 years. Must be due to obstruction to feces in rectum or obstruction in small intestines, not much abdominal pain, but 4 to 5 stools everyday. Never hard, thick, or normal stools. But mysterious thing about me is when I have no seminal emissions for few days, my stools get improved. Though there is no scientific connection between these 2, my practical experience suggests something else. Also when I took herbal medicines to harden my soft stools, my semen also gets thicker. Published: July 14 ::


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Clostridium difficile (C. difficile) is a bacterium that is related to the bacterium that cause tetanus and botulism. The C. difficile bacterium has two forms, an active, infectious form that cannot survive in the environment for prolonged periods, and a nonactive, "noninfectious" form, called a spore, that can survive in the environment for prolonged periods. Although spores cannot cause infection directly, when they are ingested they transform into the active, infectious form.

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