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February 10, 2012

Patient Discussions: Crohn's Disease - Symptoms at Onset of Disease

Question:The symptoms of crohn's disease can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Published: June 19

When turned 16, I started to get severe abdominal cramps and chronic diarrhea. I lost 15lbs in less than 2 weeks. I also became severely malnourished and anemic. Now, 25 yrs later, I am much better at maintaining my weight and have been on a special diet (no milk/dairy products, low-residue diet.

Published: June 16

Feeling sick a couple of hours after eating, it doesn't matter what I eat.

Published: June 09

I'm a 33 Year old woman and have had Crohn's disease since I was 26. I have been on azathioprine immunosuppressant for 18 months now and have noticed that I am losing my hair which is quite worrying , also my scalp is tender and my hair is very dry.

Related Reading: azathioprine

Published: June 02

My symptoms started with occasional abdominal pain and eventually severe pain when I had a bowel movement which at the time I described to my family as though it felt as though I was passing razor blades out when trying to have a BM. Eventually this progressed to the point that I lost close to 100 lbs. and was truly miserable and felt as though I was dying. I tried Asacol and metacaptourine. What saved my life was getting on Remicade IV treatment every 8 weeks or so. I've been rec Remicade for approx 5 years now. I do have to have a surgical dilation of my rectum every 4 -6 months to open up my tract to allow me to go.

Published: June 02

I was diagnosed with Crohn's Disease 5 years ago when I was 16 years old. My initial symptoms was chronic diarrhea after almost every meal, I lost about 10-15 pounds in 2 months. I had severe abdominal pain and had occasional sores in my mouth.

Published: June 02

I was 40yrs old when I started having abdominal pain that was vague (not the kind you touch and feel pain), but notable. Definitely not the "bad gas" type but like stabbing on my left side. It was 2mos before I decided to go to dr. (I'm a mother!) He thought I was having pain from a smoldering appendix and sent me for CT scan. Turns out they found I had Crohn's. I did not have diarrhea or any complex issues at that time. I could live with the pain w/o meds. It's been about 16mos since the diagnosis and I haven't been back to dr. However, the symptoms are getting worse - I have lots of gas and get terrible urgencies to go to bathroom 2-3x day w/runny stool usually 3/7days of the week.

Published: May 23

I had severe pain and some bloating on the right side of my belly button. It was most noticeable in the morning when i would first wake up and than periodically throughout the day. My stools were loose and i even had some blood in my stool but not on a regular basis.


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Crohn's Disease - Diet Question: What diet changes did you have to make, or continue to make to control the symptoms of your Crohn's disease?

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