Patient Comments: Coxsackie Virus - Symptoms

What symptoms did you experience with your Coxsackie virus infection?

Comment from: frustrated mom, 35-44 Female (Caregiver) Published: October 08

My son is 12 1/2 years old and when he was 1-1/2 the doc said he had Coxsackie virus. I only remember a sore on his chin and every year he has an outbreak in the same spot.

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Comment from: TexasGrandma, 3-6 Male (Caregiver) Published: July 02

The child had blisters on his feet, hands and sores around the outside of the mouth and rash in the throat. He screamed from the pain in his mouth and would not eat or drink and said everything he ate felt hot and burned.

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Comment from: nanna E, 45-54 Female (Patient) Published: May 20

I became ill with what I thought was the flu in March of 2013. I had general achiness, a fever, a hacking cough from congestion. I ran a fever for only one day, but felt weak and run down. This went on for about four weeks before my breathing finally got so bad I couldn't sleep, even sitting straight up. I went to the ER, and after days of tests, was found to have Coxsackie B and my heart was damaged. I also had pneumonia. My heart was only pumping at 10%. I was hospitalized for five days, had many tests, and was told I have congestive heart failure, which may be permanent. I'm still recovering and doing more tests. Coxsackie is a monster virus.

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Comment from: kriton52, 55-64 (Patient) Published: November 30

The first symptoms are like the flu with a sore throat, upper respiratory congestion, and coughing up thick material from the upper lungs. Also had and average fever, sore muscles, and lots of sleeping. I kept thinking I should eat but when I got food I couldn't really eat it. I drank lots of water. Finally, I started to develop blisters on the bottoms of my feet which in the course of two days became unbearable. I could not stand on these festering blisters even though I am a mere 168 lbs. When I went to the E.R. they discovered it on my fingers too.

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Comment from: MominSanDiego, 35-44 Female (Patient) Published: September 26

I'm a 41 year old female with a 2.5 year old. He had coxsackie when he was 1 year old. I recognized the symptoms but I just came down with it last week. It started with flu-like symptoms, a low grade fever for 1.5 days and full body aches and then the mouth blisters appeared. They coated my throat, inside my lips and under my tongue and I was unable to eat anything except for ice water, milk shakes and undercooked scrambled eggs for 6 days. Even chicken broth hurt to eat. Listerine and gargling was too painful. Ibuprophen and Tylenol helped a little. It was so painful. I also had a headache 24/7. I am finally able to eat real (but mild) food today, Day 8. No blisters any where else thank goodness!

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Comment from: Suzy, 45-54 Female (Patient) Published: August 27

I woke up with a sore throat on Sunday, but it wasn't that bad. I had a few sores on the inside of my lips and cheeks but thought that my adult braces caused it. I ran a low grade fever on and off and by Tuesday I had a horrific migraine with neck pain, abdominal pain, unbelievable joint pain, and a constant delirium and fog. The whole thing lasted 10 days and looking back on it I realized that my palms itched the entire time. If this ever happens again I will seek a doctor sooner.

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Comment from: TLC, 35-44 Female (Caregiver) Published: August 17

My husband got Coxsackie b virus about 4 months ago. His symptoms have been: Fevers: 100-103, Chills, Night sweats, Severe joint pain, Fatigue that doesn't go away, Swelling of ankles and hands, Tiny red dots/ rash on his back and ankles, Swollen lymph nodes on neck, 2 months later swollen lymph node on left collarbone. He was found to be at risk for lupus and his Ana came back positive and then it came out negative. Doctors performed biopsy and preliminary results say 35% t-cells are abnormal. Either due to virus or lymphoma. They are focusing on lymphoma it seems because they keep insisting that the virus should have resolved itself within 1-2 weeks. I wish they would read online of the people I have found that are suffering more severe same symptoms. So they are checking to see if abnormal cells are due to virus infection relapse or lymphoma. Meanwhile the only medicines he is on are pain pills!! I have done my own research and studies have shown that people with post viral relapse are deficient in Selenium and so far research shows that mice fed with Selenium diets fight off the virus much quicker and some people are on Selenium now and showing improvement. Also some patients with severe symptoms being treated with: pleconaril.

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Coxsackie Virus - Experience Question: Please describe your experience with Coxsackie virus.
Coxsackie Virus - Treatment Question: What treatment did you or your child receive for a Coxsackie virus infection?

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