Patient Comments: Costochondritis and Tietze's Syndrome - Treatments

What was the treatment for your costochondritis and Tietze's syndrome?

Comment from: jadedFangs, 45-54 Female (Patient) Published: October 13

I was just diagnosed with costochondritis almost a year ago, and I have been on trazodone, tramadol, Ranexa, and prednisone. I am now on duloxetine, cyclobenzaprine, hydrocodone, clonazepam, and nabumetone, not much of them have worked much. I have had an EGD (scope of stomach) looking for acid reflux, GERD, and heart burn, none of those found except for a small major hiatal hernia. I had heart catheterization, the PFT (pulmonary function test, etc.), and lung test, lungs are healthy and so is my heart. So now I go to have a bone scan of sternum and ribs to see if there is more going on and they are putting me on a new medication next week. I do not wish this on anyone, it is very painful and for me therapy didn't work and most of the medicines aren't working either. I feel for those who have lived with this for a long time, I hope that one day we all can feel some kind decent relief.

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Comment from: diskatdreamer, 45-54 Female (Patient) Published: January 28

I have had fibromyalgia for about 5 years and episodes of costochondritis for about 3 years. My first few episodes of costochondritis I was given prednisone, anti-inflammatory medicines and muscle relaxer. The first couple of episodes went away in about a week. Last year's episode lasted about six weeks (it felt like much longer). I'd start to feel a little better when taking prednisone 3 times a day but then would get worse when I cut down to 2 times a day. After a few rounds of prednisone and not feeling any better my doctor had my heart and lungs checked out and they were fine. I just had to keep doing the same old thing till I finally felt better. During this time I missed quite a bit of work (I would think I felt good enough for work, go in one day and be in pain and gasping for breath when I finished my shift as a nurse's aide). I am now three weeks into a new episode. I decided that I would stay home from work and just concentrate on taking my medicines and get plenty of rest and maybe I'd do better than last year. I am having the same problems as last year and now my doctor wants me to have a cardiac consult and won't sign the papers for short term disability so that I can at least get paid for some of my time off. I have gone to pain management and talked about changing the way I take some of my medications and start physical therapy on Monday. I'm also thinking of trying a chiropractor. I'm just so frustrated and would do almost anything to get rid of the dull aching pain and the struggle to take a deep breath. I'm stuck in a vicious circle of not wanting to go to work because I don't want to accidentally harm a resident because I don't feel up to par and having to go to work to keep my job and pay the bills. Thanks for letting me rant! My thoughts are with everyone who is also suffering with costochondritis.

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Comment from: Margaret, 65-74 Male Published: November 12

I am type 2 diabetic. I have itching and stinging when I inject and over the last two weeks have developed hives all over my stomach.

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Comment from: Barbara, 35-44 Female (Patient) Published: February 26

I'm a 35 year old woman. I've had Tietze's syndrome for over 11 years, with no improvement. When it first started in 2004 the doctors misdiagnosed with costochondritis, but I've always had a large lumps on top of my left rib cage. It wasn't until 2013 when they finally gave me the actual diagnosis of Tietze's syndrome. I've been getting cortisone injection along with nerve blockers every 3 or 4 months since 2013. Unfortunately the lump and swelling are still progressing. My lump is now as large as my hand and starts just left of my sternum and ends under my left arm pit. Also I now have a new lump on top of the right side of my rib cage. My attacks make it hard to get a full breath. The only way I have been able to stop the attacks, is to find the biggest person I can find and have them push very hard on top of my lump and forcefully hold it until the attack subsides. I am hoping to get a referral to a rheumatologist soon. Naproxen, hydromorphone, and perks don't do much when it feels like I'm having a heart attack.

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