Patient Comments: Costochondritis and Tietze's Syndrome - Treatments

What was the treatment for your costochondritis and Tietze's syndrome?

Comment from: Jael, 55-64 Female (Patient) Published: August 08

8 years ago after over a year of tests, scans, other diagnoses and treatments, eventually costochondritis was diagnosed within 10 minutes of seeing a pain consultant. The pain is extreme, specially after exercise, but never seems to have a direct cause. After years of all kinds of anti-inflammatories and painkillers, the only one that works is oxycontin - given to replace morphine. Am on the lowest dosage I can be but it works the best, allowing me to be active. Problem: the side-effects. I was told the condition would be lifelong, but am still praying it'll heal.

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Comment from: huskywalker, 55-64 Female (Patient) Published: July 02

I was told I had tietze's syndrome, can't take ibuprofen because of high blood pressure pills. Co-codamol is a waste of time, tramadol doesn't work. I just want to be able to walk my dog, anyone tried acupuncture? 6 months now and I am really fed up.x

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Comment from: LoJo, 55-64 Female (Patient) Published: May 30

To RAman: please get a Lyme disease test. In 1990, I was misdiagnosed as having early onset RA and suffered for months before I asked for a Lyme test, which was positive. I was given a 28-day round of IV antibiotics and only have minor joint stiffness as a result.

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Comment from: Wendy, 55-64 Female (Patient) Published: May 20

I was diagnosed with Tietze's four days ago. Mine is thought to be as a result of radiation therapy for breast cancer. My main symptom was severe chest pain. It felt like a thick stake through the middle of my chest and sharp pain in my lower right ribs. I felt waves of nausea, too. I was checked for a heart attack during three visits over a four-week period, along with angina, and gall bladder and liver conditions. I had loads of blood tests. My oncologist felt sorry for me having pain for so long without knowing the reason. I am at work, but know I would be better off resting. But no work; no food! Heat packs, anti-inflammatories, and analgesics take off the edge for me. Good Luck to all.

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Comment from: bizzyali, 25-34 Female (Patient) Published: May 01

I was diagnosed after I had my three children. The physical therapist said it was because my ribs moved, making room for babies in the belly. I had kids too close together and the ribs didn't have time to go back. I spent all my time on our couch; I slept on it for a month and could never get up. My left arm had no range of motion at all; I held it as if in a splint. One day I got seriously sick – I was coughing a lot from a sinus infection. I thought I was having a heart attack, and every time I breathed, I thought I was going to die from chest pain. My doctor ran an EKG right in his office, sent me for X-rays, an MRI and a stress test with a cardiologist – all of which were good. After all that torture, I got to do PT, where I was diagnosed.

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Comment from: Casey, 25-34 Male (Patient) Published: February 04

I have been diagnosed with costochondritis and have been dealing with is for just over a year. It started with a coughing illness. After some very hard coughing, my chest hurt for a few days. It has been off and on since, and has landed me in the ER a couple of times. After anti-inflammatories did not fix it, we tried physical therapy. After that, I got some steroid injections. The doctor did the procedure incorrectly and punctured my lung putting me in the hospital for a week. After all of this, I am back where I started, and hoping it will just go away.

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Comment from: Nanny, 45-54 Female (Patient) Published: October 31

I was misdiagnosed of having a torn bicep and arthritis in my clavicle joint by one doctor and was to have surgery. I was scared to death because I knew in my heart a torn bicep did not hurt in my chest area. I asked another doctor if the MRI was read clearly and of course it was not. I do not have a torn bicep I have Tietze syndrome or costochondritis. It is very painful, and I can not take cortizone shots so I have to deal with it on my own and get plenty of rest. I can't work because raising my arms higher than my shoulder is severely painful.

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