Patient Comments: Colostomy - Day to Day

Do you have a colostomy? What are your tips for dealing with it day to day?

Comment from: superm, 65-74 Female (Patient) Published: March 04

On 12/13/13 I woke up with the worst stomach ache I had ever had. I went to work and had to leave due to the pain. On 12/24/13 the doctors had no choice but to give me a temporary colostomy. The first weeks were hard because of the wrong bag. Thanks to an amazing young man at Coloplast and an amazing nurse, I found the correct bag. The best advice I got was to drink tons of water. I also really watch that I get enough vegetables and fruit. I keep a sense of humor, as my doctor said "poop is what it's about, even fleas poop". I am an extremely active, fit 66 year old. My diet has always been amazing, so for diverticulitis to occur was unthinkable. Yes, I did have a pity party, but thought I still have my eyes, legs, etc., and I"m going to live. Best of luck.

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Comment from: theresa220, 45-54 Female (Patient) Published: March 04

I had emergency surgery on 12/23/13 and they removed part of my colon due to diverticulitis. My reversal surgery is supposed to be scheduled soon, they told me 8 weeks to 3 months I had to wait. It has been so hard dealing with a colostomy bag and I would not wish this on anyone. I had to go back to the emergency room because my skin was retracting from my stoma causing bleeding. I cannot wait for the reversal so my life can get back to normal. I have lost 25 lbs and I hope I continue to lose more weight because I am overweight. But I look at this as a life changing event and I have learned to cook light and eat better. Good Luck to anyone out there that has to go through this experience.

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