Patient Comments: Colostomy - Cause

Question:What was the cause of your colostomy?

Comment from: Wizard, 75 or over (Patient) Published: February 27

I had a colonoscopy done at a medical center (not a hospital), trust me, that is not the way to go. If your doctor does not do the procedure at a hospital, run and find you a new doctor. I ended up with a hole in my colon and had to go to the hospital and have emergency surgery. I ended up with a colostomy bag for 4 months and then the reversal which was worse than getting the colonoscopy done. If I had known I would not have done the reversal, and lived with the bag until I got tired of living.

Comment from: LNS, 35-44 Female (Patient) Published: October 04

I was diagnosed with diverticulitis and had to have an emergency surgery during Memorial Day weekend of this past year. I have been with my colostomy for about 4 months now and will be scheduled for the reversal sometime in November. I know the recovery was a bit much but I am curious how it will be this time around.

Comment from: nat, 45-54 Female (Patient) Published: May 27

I had diverticulitis and on April 19th I had a colostomy. I am fortunate to be able to get it reversed however I am wondering how bad the pain is.

Comment from: DES57, 55-64 Male (Patient) Published: December 16

I was diagnosed with stage 3 colon cancer in 2007. I went through 8 weeks of chemotherapy and worst of all, radiation before they would operate. Two feet of my colon were removed and I had a colostomy for 8 months. I hated every minute of the bag and was so happy to have the resection. Now 7 years later, the damage the radiation did to my colon has made it useless. I have fought constant pain and constipation for 3 years and have to use a catheter to get my bowel empty. So this Friday 12/18/15 the surgeons are going to remove my entire colon and I will have a permanent bag. I want to live but am very depressed about the situation. I would never have gone through the radiation if I only knew what I know now.

Comment from: wanda, 55-64 Female (Patient) Published: August 25

After a day like all others I all of a sudden had severe pain in lower stomach. I went to the emergency room and found I had perforated bowel from diverticulitis, and had emergency surgery the next morning. The colostomy bag (which I call ole faithful) was a blessing to me; the pain I had was horrific. After surgery the pain was gone, but replaced by the bag. Yeah, it was very hard a t first trying to figure the bag out but after 6 months of wearing it I am ok with it. I will be going for reversal surgery on September the 3rd. Anyone who has to wear the bag should consider it a blessing to be able to wear it and live!

Comment from: BobB015, 55-64 Male (Patient) Published: December 10

I had to have a colostomy due to diverticulitis. The CAT scan showed an abscess with a micro-perforation. At first they weren't worried about it and were treating me with medicines in the hospital. For some reason my surgeon didn't like what he was seeing and during surgery found a large abscess that was hidden in the CAT scan that required removal of part of my colon. I owe that man my life, I really do believe if that abscess had ruptured I'd have died. So now I have a colostomy bag while they wait for my colon to heal enough to do a reversal. I keep reading about cleaning out the bag and I went through that at first, but now have a 2 piece bag that is wonderful. I just remove the bag, throw it away, clean around the stoma, and snap a new bag into place. This really is the way to go. I was really depressed about the bag until my VNA (Visiting Nurse Association) nurse showed me this setup; now life is bearable while I wait for the reversal.

Comment from: Stonell, 35-44 Female (Patient) Published: April 11

I had my colostomy in August of 2010 as a result of diverticulitis. I was diagnosed with the disease in June of that same year. I was very sick and it took almost 2 weeks before I started to feel better. I had a lot of stressful things going on in my life at the time and when the disease reared its ugly head again not 3 months later one of the diverticula became cystic and ruptured. I was very sick and full of infection. I was lucky enough to get to the emergency room and had surgery that same night. I was a preschool teacher at the time and couldn"t go back to work due to lifting requirements. I recovered quickly and within 3 months had my reversal and am currently living a normal life free of the diverticulitis. I will agree that a sense of humor and a positive attitude are a necessary part of the recovery process.

Patient Comments

Viewers share their comments

Colostomy - Day to Day Question: Do you have a colostomy? What are your tips for dealing with it day to day?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors