Patient Comments: C. Difficile - Diagnosis

How was your clostridium difficile colitis diagnosed?

Comment from: UtahD, 75 or over Female (Patient) Published: January 04

I was diagnosed with C-diff about three years ago. What an ugly situation! I had it for several months. I had vomiting and diarrhea, dehydration, etc. I tried antibiotics and would just get finished with the treatment, and then the C-diff was back. It was the most miserable time of my life. I found that if a person will include the probiotic saccharomyces boulardii along with the antibiotic, it helps a great deal. I finally started getting better after adding that. I also took other probiotics, but the saccharomyces is the one specific for C-diff. I now take a dose of the boulardii every day. I had a knee replacement in March of 2010 and took antibiotics. Then I had to take antibiotics for a urinary tract infection right after that and was worried about having to take so many antibiotics. Fortunately, I stayed well. I don't know how I got the C-diff in the first place. I had not been on antibiotics, nor had I been in a hospital or nursing home. It is a scary thing, so I would strongly urge someone with C-diff to try the saccharomyces. Hopefully it will help you as it did me. Also, my gastroenterologist told me to take antibiotics only if it was absolutely necessary! I am very careful about that now.

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Comment from: mommyofthemase, 25-34 Female (Patient) Published: December 01

I am only 26 and thought I had the "flu," but I had been running a constant fever for three months, so I had an appointment to see an infectious disease doctor that my regular doctor set up for me. My regular doctor had taken a stool sample because he had suspected c-diff because I had taken Clindamycin. When I went to the infectious disease doctor, sure enough, it was C. diff! He didn't understand how I got it. I haven't had any hospitalizations in a long time, I'm young, but I had worked in a nursing home when I was 19. We're assuming that's where I was exposed to it even though I followed all the proper procedures when taking care of C. diff residents. I am now on my second round of Vancocin, as I am severely allergic to Flagyl.

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Comment from: cad, 55-64 Female (Patient) Published: November 19

Reading these comments has helped me cope with my own situation and know there is hope in getting better. Three months ago I had a dental procedure and the dentist put me on an antibiotic as a precaution against an infection. A week after I stopped the medication I started with the uncontrolled diarrhea. Went to the doctors and was told I had C diff. It is now November and I am on my fourth round of it. I ended up in the ER this time with pancolitis, dehydration, and uncontrolled diarrhea. I now have infectious disease in on my case. I was told that I had not been on the medication long enough (Vancomycin). I was on a two week course each time and it comes back within a week. Now I am on Vancomycin for 5 weeks with a tapering course. They also said you just should not stop it. I am also on Questran. It binds the toxin and then you pass it. I am hoping this is it. I have always been healthy and I don't take antibiotics but the dentist scared me about infection so I took it. At this point I would have rather taken my chances on an infection that to go through this.

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Comment from: smurf, 35-44 Female (Patient) Published: November 19

I developed C. difficile about 2 weeks after being in the hospital for my C-section at age 34. I was on antibiotic to prevent infection after the surgery and then another one started afterwards for a bladder infection. I was started on Flagyl for the C. diff. only to end up with severe hives. Then Vancomycin was started but it never fully cleared up. It took 4 months to clear this C. difficile up. You have to be aggressive with the doctor. I ended up going to a gastroenterologist and he put me on Questran (cholestyramine) which you mix with water and drink before a meal so it helps wash out the C. difficile toxin. That is what helped me in conjunction with Vancomycin and a refrigerated probiotic. I also had a colonoscopy to check to see if the C. difficile had done damage to my digestive system. GO TO A GASTROENTEROLOGIST! If that is not possible, ask for the 3 meds listed that helped me. Family practice doctors sometimes just don't know what they are doing!

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Comment from: Jan, 45-54 Female (Patient) Published: November 19

At age 48 I was given an antibiotic (Augmentin) for a sinus infection that began my nightmare. I became extremely ill, to the point I was bed ridden from sheer exhaustion because of C Diff Toxins. I was given many doses of Flagyl and Vancocin and neither of these meds worked. I kept relapsing with C Diff for almost 2 years. Finally I got the courage to go to see a doctor who administered a "stool infusion" to get rid of this nasty bug. The procedure worked for me. It has been a little over 2 months now and I have no signs of C Diff and my test results proved negative for the toxins. Of course, I am now very concerned that I could acquire this again because of how many relapses I have had so, for me no antibiotics is a "must" for the rest of my life.

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C. Difficile - Share Your Experience Question: Please share your experience with C. difficile colitis.
C. Difficile - Symptoms Question: What were your symptoms associated with C. difficile colitis?
C. Difficile - Antibiotics that cause it Question: Did antibiotics cause your C. difficile colitis? Which one(s) did you take?
C. Difficile - Treatment Question: What kinds of treatment, including medication, did you receive for C. difficile colitis?

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