Patient Comments: Chronic Fatigue Syndrome - Coping

Question:How do you cope with chronic fatigue syndrome?

Comment from: 35-44 Male (Patient) Published: April 19

I'm still trying to find a medication that works for my chronic pain and chronic fatigue syndrome. Extended relief medications aren't an option as most of my small intestine has been bypassed in a surgery. Morphine 30 mg 4 times a day gives no relief. I am allergic to methadone and Norco. Percocet has no effect. I am at a total loss and my pain is nonstop. I have chronic pain syndrome with no cause and fibromyalgia has been ruled out. I have taken alternatives like antidepressants, anti-seizure and others medications. I just want to be able to wake up and not cry as soon as my body moves.

Comment from: hmj, 45-54 Female (Patient) Published: February 01

I have hypothyroidism and chronic fatigue syndrome. My doctor prescribed Provigil and it gave me back my life. I can't' afford to fill the prescription in the US, so have to get it filled in a Canadian pharmacy. But I call Provigil my 'stay alive' pill.

Comment from: CrazyNanna, 55-64 Female (Patient) Published: November 04

I cope with my chronic fatigue syndrome by first accepting that I have to size down my life. I exercise every day I can on a graded level; yoga and walking or cycling or swimming. I ensure I have an extremely healthy diet. I keep away from negativity and that means not listening to the news, not reading newspapers and eliminating friends who are negative from my life. I also spend 15 minutes on waking confirming all the good and positive things I have to look forward to that day. I have to have a strong mental attitude. I also try to eliminate stress from my life. No alcohol and early nights with good quality sleep is so important; and mixing with positive people.

Comment from: floss26, 19-24 Female (Patient) Published: February 20

I'm a 20 year old female who has chronic fatigue syndrome for 3 years now. It took my doctor 2 years to realize I had it, and it was not low iron or depression. I can't get a job as I am only able to stay awake for 4 hours a day and when I am awake I am tired and sore. I wish people would take this condition seriously as I have to live like this and I have no life now and am lucky my family is there for me as I have nothing else. There needs to be more support groups out there for us to deal with it together. Hope everyone who is unwell gets better soon.

Comment from: Jeb, 45-54 Female (Patient) Published: March 24

I am a middle-aged man who has had CFS for 10 years. It took me a while to accept that I can't cure this; I can only manage it. I have done that but regularly fall victim to the push-and-crash cycle: I feel good, do too much, and then crash. It takes weeks to get back to "normal." I take meds for mood (Prozac), sleep (Ambien) and pain (Flexiril) but Concerta has made the biggest difference; it regulates my energy level, helps me focus, and stabilizes my cognitive functions. I am able to be productive during the day (though I am still very tired at night). I hope this helps someone.

Comment from: Mel, 65-74 Female (Patient) Published: February 02

All I can say is that after that nasty virus I got on the cruise ship in October, it knocked out my immune system. I can only now, after 4 1/2 months, go to the store, maybe walk for 5 minutes outside and then rest all day long. If I do more, I am punished by my chronic fatigue syndrome. I wake up with a nasty sinus and back of neck headache, fever, stomach issues, and IBS (irritable bowel syndrome). I am an otherwise healthy 66 year old, but this has made me someone else. A sick person. Golden years; what a joke! My blood tests are normal. Another joke. How can that be! I take NSAIDs for relief of headaches. If I ignore the symptoms and do not rest for hours, even days, I get flu symptoms the next day. Sometimes they last for days. I have no answers. This is not living.

Patient Comments

Viewers share their comments

Chronic Fatigue Syndrome - Symptoms Question: What symptoms and signs did you experience with your chronic fatigue syndrome?
Chronic Fatigue Syndrome - Diagnosis Question: Please describe the events that led to a diagnosis of chronic fatigue syndrome.
Chronic Fatigue Syndrome - Coexisting Diseases Question: In addition to CFS, do you have another disease or condition? Please share your story.
Chronic Fatigue Syndrome - Treatment Question: What kinds of treatment have you had for chronic fatigue syndrome? What medications do you take?

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