Patient Comments: Chemotherapy - Coping With Side Effects

What chemotherapy side effects have you experienced? How do you cope with the side effects?

Comment from: The Suspector, 55-64 Male (Patient) Published: January 22

I was diagnosed 5 years ago with colon cancer, and started with chemotherapy, 8 to 9 hours on Monday, 4 to 5 hours on Tuesday. Same after surgery, every 2 weeks, and had 5 weeks of radiotherapy with Xeloda pills. I had surgery, and the doctor could not re-attach colon. It fell apart in his hands due to radiotherapy, he tried 3 times. I have an ostomy bag that will be with me until I die. My rectum is tied off, 4 inches long. The last colonoscopy I had, the doctor said it was very inflamed, no possibility of re-attachment. I would not take radiotherapy again, didn't know the possible results, and doctor didn't tell me. Just glad to be alive. Keep your chin up, things could be a lot worse!

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Comment from: Corrrine, 35-44 Male (Caregiver) Published: March 04

My son age 36 was diagnosed with a rare abdomen cancer in May, 2013. He had one surgery where they removed some big tumors in his intestines, put a bag on him and closed him back up. They started giving him chemotherapy in May and every two weeks since then. He has been having check-ups but the tumors are not growing or shrinking. The chemotherapy that they give him is a very aggressive one. He has not lost any weight, no hair loss, has never gotten sick and is able to do everything that he has always done. They have mentioned a word Avastin that seems to be working on him. He is going on his 23rd chemotherapy treatment. They wanted to do surgery and still might where they take everything out and scrape the abdomen, but are holding off until absolutely necessary because this drug is working on him so good. We know that he will be on chemotherapy for life, surgery or not, but I am wondering how much of this aggressive chemotherapy his body can take before he starts burning out.

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Comment from: cancerfighter, 45-54 Male (Patient) Published: June 01

I was diagnosed last July with stage 1 colon cancer, they removed 2.5 ft of my colon and 14 lymph nodes, all of which came back negative for cancer. The cancer clinic chose not to give me chemo in October after I healed, unfortunately last month I was diagnosed with stage 4 cancer of the liver. I took my first treatment last week, so far the side affects are minimal. My recommendation to anyone going through chemo is to maintain a positive attitude, live for today! Don't live in the past! know that you will have good days and you will have bad, god willing, you will get through this. And remember what doesn't kill you, only makes you stronger.

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Comment from: thermad, 45-54 Female (Patient) Published: April 02

I have breast cancer and I have undergone 2 rounds of chemo. My side effects are lack of taste, muscle pain, constipation, runny stools, blurry vision, hair loss, acne, you feel like you have the flu. First week I didn't want to eat, second week would kill someone for food. My main problem is the steroids they are driving me crazy. Chemo brain, my oncologist thinks I'm depressed. I need to walk more. I wish doctors would listen.

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Comment from: Roxanne, 45-54 Female (Patient) Published: October 07

I was diagnosed with ovarian cancer when I had surgery done with burning the lining of my uterus and 2 days later became very constipated and I was in lots of pain. This continued for 3 months and finally after dealing with the pain and loss of weight I went into the hospital. They discovered a mass on my right ovary which lead them to surgery and they removed my right ovary with the mass attached. After that I felt great and things began working as normal. I was to revisit my gynecologist six weeks later. But received a call 4 weeks later and the doctor wanted to see me as soon as possible. The news was ovarian cancer. I was devastated and I could not believe it. The doctor said I was in the beginning stages and that was a good thing. I was scared, angry and not believing what was next. They began me on chemo right away. If people tell you its bad, its bad. From the first treatment I had pain in my legs and feet so bad that it felt like a jumping toothache only 3x worse. I lost my hair 2 weeks after the 1st treatment and I felt so awful. The taste of food was not good (I did use plastic spoons, fork, and knives), that helped a lot. I couldn't drink because the water tasted terrible and my mouth hurt. I thought if this is any indication of what I'm in for its going to be a long road. It was 6 treatments later and I was done. Today I'm doing fine. I did gain weight that I am not comfortable with but will loose it in time. My energy is not the same and I still feel really tired at times. Its been almost two years and my legs still ache but certainly not as bad as when I was on chemo. My advice to anyone taking chemo is just breathe and put all your energy (what little you'll have) into resting, reading books, doing crossword puzzles and trying to stay sane even though its difficult. I kept a journal everyday, talked about how I was feeling and what was bothering me, what was hurting, if I was sick, if I ate and made sure I kept my water intake up. This helped me alot once I started. I'm 47 years old and I certainly hope with all my heart and soul I never need to take chemo again. When people tell you you'll do fine they have no idea what they're saying because its not them going through hell, feeling like they look awful or them not being able to live a productive life and how your whole life is just in total disbelief of what going on. I suffered so much emotion physically and mentally. I would never wish cancer on my worst enemey because it is the toughest fight you'll ever go through.

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Chemotherapy - Experiences Question: What was your experience with chemotherapy?
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