Patient Comments: Cervical Dysplasia - Experience

Please describe your experience with cervical dysplasia.

Comment from: bgsu1983, 45-54 Female (Patient) Published: January 27

In 1991 I was diagnosed with cervical dysplasia, cryotherapy was performed and I had no abnormal Pap smears until 2010. During this time I was going through a difficult period within my marriage. I suspected my husband was seeing someone else, and passed the new HPV on to me. I now am scheduled for a loop, colposcopy, hysteroscopy and D & C, and I am scared and angry.

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Published: June 04

In 2002 at the age of 30, I was diagnosed carcinoma-in-situ after dysplasia and a cone biopsy. I had a partial hysterectomy. Then in 2004, at 32, I had my ovaries removed due to very large cysts. Now, at 40, I just had an annual exam with my Oncologist and the results of my PAP were abnormal with mild/moderate dysplasia again. I'm scheduled to go back this Thursday for a biopsy. I don't know what the next steps will be.

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Comment from: zoie, 19-24 Female (Patient) Published: May 29

I am 24 and was just diagnosed a couple weeks ago with having mild dysplasia cin1. Now is the waiting game I was told, It's not too severe to do a procedure but it's not, not there. Should I go in for a second opinion right now even though it's only mild dysplasia or should I wait. I'm not really sure as to what to do, this was my first abnormal pap and finding out I have a low grade of HPV. I have read endless info on everything to do with HPV and so forth I am just confused on what to do next.

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Comment from: Grandma, 55-64 Female (Patient) Published: April 04

I am so sorry, all of you are going through the pain and agony of abnormal Pap tests, dysplasia and cancer. I was 24 in 1975 when I received a post card in the mail saying I needed to call the office, They did a repeat PAP test that came back as Class 3 dysplasia, I then had a D&C. They decided to follow it for a few months. I felt very lucky because I was married with 2 children. I wanted more children but I didn't have a clue what as going to happen next. I did know my grandmother had died at 31 of uterine cancer, and I didn't want that to happen. After two years of biopsies and colpops, they did a full hysterectomy. My doctor said I was very lucky because it had spread outside the uterus but he thought they had gotten it all. My biopsy report said the margins of resection are clean - those were the best words I ever heard. That was very scary at 25 years of age. I went through menopause three times, at 25, at 38 and again at 55. I never had another problem after the hysterectomy. Two things I wanted to say, I was a virgin when I married and never had sex with anyone else. Neither did my husband. So HPV isn't the only cause of dysplasia and uterine cancer. Secondly, if you are young, I would have some eggs stored away so if need be you can have children by surrogate. I know it's not the way you want to do it, but you are better off prepared and then if you have to have a hystero - if won't be as horrific. Women today are lucky in that most men are more informed, my husband never understood why I was upset and after the hysto - he pretty much said, there is nothing to be upset about - if it fixed. Hang in there; always get a second or third opinion on both the diagnosis and on what to do for surgery. It is well worth the extra time and effort.

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Comment from: momofthree, 35-44 Female (Patient) Published: March 21

I am 38 years old. I gave birth to my third child 4 months ago. During my pregnancy precancerous cells were discovered. It was said to be mild and I was not treated, other than colopo for monitoring during the pregnancy. I have just returned for my after birth follow-up regarding these abnormal cells. Yesterday I had a biopsy of one of the spots that now looks "bad" according to my doctor. I will return in 2 weeks to discuss the results and see what the future holds regarding treatments, etc. I have three sons who need their mommy and I'm counting on this being treatable! Have any of you had a similar experience and if so, please share...good, bad, or ugly...I just want to be as informed as possible. Thanks.

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Comment from: Hera, 35-44 Female (Patient) Published: February 24

Two and a half years ago, I had my first pap that came back testing positive for HPV. I had my first colposcopy 2 years ago performed by a doctor at the family practice I go to, which came back with no dysplasia. I have had repeat paps every six months. In December, I was referred to a "real" obgyn. I had my second colposcopy done in January on a Thursday and was told results will be mailed to me. She called me Tuesday and made an appointment for me to have abnormal cells removed. I am so scared right now. She didn't make it sound like it was anything serious but that it just needed to be taken care of. However, since Monday I have been spotting after sex, which has NEVER happened before. So many questions, yet everything I can find online says that it takes years to progress from precancerous to cancerous cells.

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Cervical Dysplasia - Diagnosis Question: Please discuss the tests and exams that led to a diagnosis of cervical dysplasia.
Cervical Dysplasia - Treatment Question: What type of treatment or procedure did you have for cervical dysplasia?
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Cervical Dysplasia - Prognosis Question: Have you had a recurrence of cervical dysplasia? Please share your story.
Cervical Dysplasia - Symptoms Question: What were the symptoms of your cervical dysplasia?

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