Patient Comments: Cervical Dysplasia - Describe Your Experience

Question:Please describe your experience with cervical dysplasia.

Comment from: Julia, 25-34 Female (Patient) Published: May 21

I am 27 years old, and I have been diagnosed with severe dysplasia. I had been told before, during and after my pregnancy that there were a few abnormal cells on my cervix but nothing for me to be worried about. I then went two years without having a PAP smear (not having a doctor, and having a small child can keep your mind off of these things). I am going in tomorrow to have the cells lasered off, and I am terrified. They did the biopsy and told me that there would be no pain involved! Boy were they ever wrong!!! I hurt like crazy for the rest of the day. My husband seems to be entertaining the idea that I've cheated on him (which I have NOT) because this was caused by this HPV. I'm worried, embarrassed, and unsure as to the future possibility of having another child. I've read some of the other comments on here, about hysterectomies, and I know my mother had to have one, albeit for different reasons, but still. Wish me luck, and for Pete's sake, get your PAP smears done, on schedule!!!! Save yourself some of the emotional upheaval that some of us have had to go through.

Comment from: ds77, 45-54 Female (Patient) Published: May 06

I am a 50-year-old female. I contracted a mild-to-moderate case of cervical dysplasia when I was 23 years old. I had laser surgery. I got married and had three children. When I turned 36, it came back severe with CIN2. I had a LEEP procedure. When I turned 43, I developed severe bleeding and was diagnosed with HPV with the deadliest cancer-causing strain. A uterine ablation was performed but ultimately failed. My gynecologist prescribed additional testing and found tumors and fibroids. My radical hysterectomy came at the age of 46. I strongly recommend being an advocate for your health and wellness. I lost a friend at the age of 31 to cervical cancer because she could not find a doctor that would take a radical move to cure her. After, she passed, her oncologist also died. Seek treatment and second opinions; it just might save your life. I know first-hand, and I am grateful that I did. I am doing quite well.

Published: June 04

In 2002 at the age of 30, I was diagnosed carcinoma-in-situ after dysplasia and a cone biopsy. I had a partial hysterectomy. Then in 2004, at 32, I had my ovaries removed due to very large cysts. Now, at 40, I just had an annual exam with my Oncologist and the results of my PAP were abnormal with mild/moderate dysplasia again. I'm scheduled to go back this Thursday for a biopsy. I don't know what the next steps will be.

Comment from: zoie, 19-24 Female (Patient) Published: May 29

I am 24 and was just diagnosed a couple weeks ago with having mild dysplasia cin1. Now is the waiting game I was told, It's not too severe to do a procedure but it's not, not there. Should I go in for a second opinion right now even though it's only mild dysplasia or should I wait. I'm not really sure as to what to do, this was my first abnormal pap and finding out I have a low grade of HPV. I have read endless info on everything to do with HPV and so forth I am just confused on what to do next.

Comment from: Grandma, 55-64 Female (Patient) Published: April 04

I am so sorry, all of you are going through the pain and agony of abnormal Pap tests, dysplasia and cancer. I was 24 in 1975 when I received a post card in the mail saying I needed to call the office, They did a repeat PAP test that came back as Class 3 dysplasia, I then had a D&C. They decided to follow it for a few months. I felt very lucky because I was married with 2 children. I wanted more children but I didn't have a clue what as going to happen next. I did know my grandmother had died at 31 of uterine cancer, and I didn't want that to happen. After two years of biopsies and colpops, they did a full hysterectomy. My doctor said I was very lucky because it had spread outside the uterus but he thought they had gotten it all. My biopsy report said the margins of resection are clean - those were the best words I ever heard. That was very scary at 25 years of age. I went through menopause three times, at 25, at 38 and again at 55. I never had another problem after the hysterectomy. Two things I wanted to say, I was a virgin when I married and never had sex with anyone else. Neither did my husband. So HPV isn't the only cause of dysplasia and uterine cancer. Secondly, if you are young, I would have some eggs stored away so if need be you can have children by surrogate. I know it's not the way you want to do it, but you are better off prepared and then if you have to have a hystero - if won't be as horrific. Women today are lucky in that most men are more informed, my husband never understood why I was upset and after the hysto - he pretty much said, there is nothing to be upset about - if it fixed. Hang in there; always get a second or third opinion on both the diagnosis and on what to do for surgery. It is well worth the extra time and effort.

Comment from: momofthree, 35-44 Female (Patient) Published: March 21

I am 38 years old. I gave birth to my third child 4 months ago. During my pregnancy precancerous cells were discovered. It was said to be mild and I was not treated, other than colopo for monitoring during the pregnancy. I have just returned for my after birth follow-up regarding these abnormal cells. Yesterday I had a biopsy of one of the spots that now looks "bad" according to my doctor. I will return in 2 weeks to discuss the results and see what the future holds regarding treatments, etc. I have three sons who need their mommy and I'm counting on this being treatable! Have any of you had a similar experience and if so, please share...good, bad, or ugly...I just want to be as informed as possible. Thanks.


Patient Comments

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Cervical Dysplasia - Diagnosis Question: Please discuss the tests and exams that led to a diagnosis of cervical dysplasia.
Cervical Dysplasia - Treatment Question: What type of treatment or procedure did you have for cervical dysplasia?
Cervical Dysplasia - Laser Treatment Question: Please describe your experience with laser photoablation to treat cervical dysplasia.
Cervical Dysplasia - Prognosis Question: Have you had a recurrence of cervical dysplasia? Please share your story.

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