Patient Comments: CA 125 - Testing Experience

What was the outcome of your CA125 blood test?

Comment from: Anxiety, 45-54 Female (Patient) Published: September 21

Test result showed CA125 as 790 which is very high and ultrasound showed a large cyst on the left ovary. But the doctor found it noncancerous after the surgery. This only shows that high CA125 with confirmed cyst does not necessarily mean cancer!

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Comment from: Noona, 55-64 Female (Patient) Published: August 09

I faithfully have gynecological checkups yearly. Six months after my checkup in 2014, I started getting low back ache and frequent urination. I returned to the doctor in July 2015. Ultrasound showed a 7 inch tumor. CA125 test was done immediately. The count was 2216! I had surgery within a week and six rounds of chemotherapy afterward. I have had 2 PET scans and CA125 tests have been done every 3 months. Readings have been 7 and 8. Stay positive, keep the faith!

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Comment from: jim, 45-54 Male (Caregiver) Published: August 08

My wife had a CA125 level of 32 in March after last round of chemotherapy, her 2nd bout of ovarian cancer. Recent test shows a level of 122 so we are concerned. She is scheduled for MRI and CT scan but doctors won't speculate until tests are done.

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Comment from: Steph, 45-54 Female (Patient) Published: May 06

When I was diagnosed in 2013 stage 1C my CA125 number was 21. I found out my cyst was cancer. Now my number is between 5.1 and 6.1. I don't even like that it is in the 6's this time. I did 6 rounds of chemotherapy.

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Comment from: Carolelynn, 65-74 Female (Patient) Published: April 27

I received my CA125 results today and not thrilled. I had stage 3 ovarian cancer, radial hysterectomy, and 18 rounds chemotherapy. At the time of surgery it was 1,291 and today's test was 9.5. I am upset since last time it was 7, 4.3 and now going up. You know what goes on in your mind. Plays a lot of tricks on you. I am just hopeful.

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Comment from: Caroldee, 75 or over Female (Patient) Published: July 14

I just had a CMA125 test by a gynecologist and my count is 60, double what it should be. I have to see a cancer doctor. I am worried it might mean cancer.

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Comment from: Dee, 45-54 Female (Patient) Published: January 20

I started out thinking I had a bladder infection. It wasn't. The doctor ordered a CT and it showed a 6 cm mass/cyst. I'm having surgery next Wednesday. My gynecologist order the CA-125 and said if it was high another surgeon would be doing the surgery. My CA-125 showed a 32. The doctor doesn't seem to like that number. He likes to see a 10. He consulted with the other surgeon and he was instructed to go ahead with the planned surgery but I'm a little worried that it will be cancer.

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Comment from: Rae, 65-74 Female (Patient) Published: December 30

I was having trouble with child's pose in yoga. Ultra sound revealed fluid in my abdominal cavity. CT scan showed stage 3C ovarian cancer. CA 125 was 1350. I had major surgery on May 12, 2014, bowel resection, bladder and everything out. It was fallopian tumor. After first round of 6 chemotherapies every 3 weeks CA 125 was 7.5. In June 2015 CA 125 was 71 and CT scan revealed some small areas in abdomen. I was started on chemotherapy, but levels rose to 500. I was switched to Gemzar and Avastin, CA 125 is now 16 and I will have CT scan tomorrow. My doctor said not to get too involved with CA 125, but rather how I feel and what scan reveals.

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