Patient Comments: CA 125 - Testing Experience

What was the outcome of your CA125 blood test?

Comment from: Carolelynn, 65-74 Female (Patient) Published: April 27

I received my CA125 results today and not thrilled. I had stage 3 ovarian cancer, radial hysterectomy, and 18 rounds chemotherapy. At the time of surgery it was 1,291 and today's test was 9.5. I am upset since last time it was 7, 4.3 and now going up. You know what goes on in your mind. Plays a lot of tricks on you. I am just hopeful.

Was this comment helpful?Yes
Comment from: Dee, 45-54 Female (Patient) Published: January 20

I started out thinking I had a bladder infection. It wasn't. The doctor ordered a CT and it showed a 6 cm mass/cyst. I'm having surgery next Wednesday. My gynecologist order the CA-125 and said if it was high another surgeon would be doing the surgery. My CA-125 showed a 32. The doctor doesn't seem to like that number. He likes to see a 10. He consulted with the other surgeon and he was instructed to go ahead with the planned surgery but I'm a little worried that it will be cancer.

Was this comment helpful?Yes
Comment from: Rae, 65-74 Female (Patient) Published: December 30

I was having trouble with child's pose in yoga. Ultra sound revealed fluid in my abdominal cavity. CT scan showed stage 3C ovarian cancer. CA 125 was 1350. I had major surgery on May 12, 2014, bowel resection, bladder and everything out. It was fallopian tumor. After first round of 6 chemotherapies every 3 weeks CA 125 was 7.5. In June 2015 CA 125 was 71 and CT scan revealed some small areas in abdomen. I was started on chemotherapy, but levels rose to 500. I was switched to Gemzar and Avastin, CA 125 is now 16 and I will have CT scan tomorrow. My doctor said not to get too involved with CA 125, but rather how I feel and what scan reveals.

Was this comment helpful?Yes
Comment from: Kim, 55-64 Female (Patient) Published: December 11

I had a right mastectomy with tram flap reconstruction and left breast reduction 15 years ago. I had sentinel node involvement and removal of 12 clear nodes. I had CA125 tests 6 monthly and no one noticed it creeping up slowly a degree a time. I began having quite severe lower back pain and feeling extremely tired about the same time daily early evening. I had pelvic ultra sound and discovered ovarian mass. It was stage 3, I had pelvic clearance and CA125 only reached low 20s. Everyone is different, but I regularly request tests as it is obviously a very quiet indicator in my case. As a foot note I have just climbed this year from 9 to 10. I am just a tad concerned.

Was this comment helpful?Yes
Comment from: Marg, 55-64 Female (Patient) Published: August 11

I had a CA125 reading at the start of my cancer of 8,319. I had an ovarian operation and today finished my 6th cycle of chemotherapy. My CA125 count is now 25. I will still will have ongoing treatment but I feel I now have hope for the future.

Was this comment helpful?Yes
Comment from: Lwebbie, 35-44 Female (Patient) Published: December 01

I've got CA125 level of 35. My transvaginal ultra sound showed two small growths and cysts in the lining of my womb.

Was this comment helpful?Yes
Comment from: Nikky, 45-54 Female (Patient) Published: April 14

I have had a CA125 blood test, the first one's result was 50, and 6 weeks later it was 129. They have fast tracked me to see a gynecologist as it maybe cervical or ovarian cancer. I am stressed to death and alongside this my ferritin is only 8. I am worried if this means I have cancer.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Ca 125 - Results Question: Share your experience with your CA 125 test results.

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.


Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.


Health Solutions From Our Sponsors