Patient Comments: Ca 125 - Results

Share your experience with your CA 125 test results.

Comment from: Brander , 55-64 (Patient) Published: July 14

In May of last year I had stage 4 uterine cancer and had the surgery. My doctor was able to remove the cancer, it was stuck to the lining of my stomach, and he removed that too. Yesterday I had my CA 125 test and it was 9. I became concerned because in May it was 7. Tomorrow I will see my doctor.

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Comment from: Ovarian cancer, 55-64 Female (Patient) Published: April 25

I have ovarian cancer and after operation my CA125 level was 161. Chemotherapy was done for 6 months and CA125 level was 13. Now after six months CA125 level is rising up to 41. Now the doctor has advised me to wait for another one month.

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Comment from: Gabby, 45-54 Female (Patient) Published: May 31

My doctor did and ultrasound because of bad cramping. The first year they said I had fibroids. I went back the next year and they did another ultrasound. They said I didn't have fibroids, but I had a cyst on my right ovary. They did a CA 125 test and it was 44. So they sent me to a gynecologist. Before I went to the gynecologist they did another CA 125 test. At the gynecologist's, they did an ultrasound. They said I did have fibroids and that they cyst on my right ovary was smaller, but that I had a cyst on my left ovary also. They did a CA 125. It came back as 33. They next day I got a call from my regular doctor about the second CA 125 they did. It came back as 61. So I am very confused. First, 44 then 61 then 33. First fibroids, then no fibroids. First cyst on right ovary, then cyst on left ovary.

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Comment from: A2nA2, 45-54 Female (Patient) Published: August 21

CA 125 before surgery was 32. Mass was intact with no cancer on the outside. Level was 65 after surgery with surgical spill. Dropped to 25 after first chemotherapy and 10 after second chemotherapy.

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Comment from: NancyV,, 35-44 Female (Patient) Published: August 18

I am a 42 year old woman who received a CAT scan 3 weeks ago due to a fall and concussion. The scan showed a meningioma tumor on the right side that a neurosurgeon wants to take a wait and see approach. I had an MRI just for more information on this tumor and discovered a 2nd small 3 mm tumor in pituitary. Again the doctor dismissed the findings. I went for blood work before my physical and my CA 125 results are 60! Blood platelets are high. Now waiting to add to blood work for hormone level. I got a 2nd MRI on pituitary and waiting for results. I am concerned but no one else is. I had many health issues prior, loss of weight, sight, vertigo, etc.

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Comment from: Linda V, 55-64 Female (Patient) Published: July 15

I was diagnosed with Stage 4 ovarian cancer four years ago. After 5 visits to my doctor who gave me antibiotics for a urinary tract infection (UTI) and said I might have irritable bowel syndrome (IBS), no scans were done, I ended up in the emergency room (ER). I did 6 months of chemotherapy (every 3 weeks) and my CA-125 went from 9,816 to 20. Two years later my CA-125 test results began to rise and finally even though the number was only 56, a CT scan was done and showed some activity. I did chemotherapy again for 4 months, every 3 weeks. I have been on infusions of Avastin for more than 3 years to try to stop the cancer. Now my numbers are rising (95), but I had a perfectly clear PET very recently. I have a call in to my doctor, but waiting is excruciating.

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Patient Comments

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CA 125 - Testing Experience Question: What was the outcome of your CA 125 blood test?
CA 125 - Cause of Elevated Test Results Question: Please describe what caused your elevated CA 125 test results.

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