Patient Comments: Ca 125 - Results

Share your experience with your CA 125 test results.

Comment from: Gabby, 45-54 Female (Patient) Published: May 31

My doctor did and ultrasound because of bad cramping. The first year they said I had fibroids. I went back the next year and they did another ultrasound. They said I didn't have fibroids, but I had a cyst on my right ovary. They did a CA 125 test and it was 44. So they sent me to a gynecologist. Before I went to the gynecologist they did another CA 125 test. At the gynecologist's, they did an ultrasound. They said I did have fibroids and that they cyst on my right ovary was smaller, but that I had a cyst on my left ovary also. They did a CA 125. It came back as 33. They next day I got a call from my regular doctor about the second CA 125 they did. It came back as 61. So I am very confused. First, 44 then 61 then 33. First fibroids, then no fibroids. First cyst on right ovary, then cyst on left ovary.

Was this comment helpful?Yes
Comment from: A2nA2, 45-54 Female (Patient) Published: August 21

CA 125 before surgery was 32. Mass was intact with no cancer on the outside. Level was 65 after surgery with surgical spill. Dropped to 25 after first chemotherapy and 10 after second chemotherapy.

Was this comment helpful?Yes
Comment from: NancyV,, 35-44 Female (Patient) Published: August 18

I am a 42 year old woman who received a CAT scan 3 weeks ago due to a fall and concussion. The scan showed a meningioma tumor on the right side that a neurosurgeon wants to take a wait and see approach. I had an MRI just for more information on this tumor and discovered a 2nd small 3 mm tumor in pituitary. Again the doctor dismissed the findings. I went for blood work before my physical and my CA 125 results are 60! Blood platelets are high. Now waiting to add to blood work for hormone level. I got a 2nd MRI on pituitary and waiting for results. I am concerned but no one else is. I had many health issues prior, loss of weight, sight, vertigo, etc.

Was this comment helpful?Yes
Comment from: Linda V, 55-64 Female (Patient) Published: July 15

I was diagnosed with Stage 4 ovarian cancer four years ago. After 5 visits to my doctor who gave me antibiotics for a urinary tract infection (UTI) and said I might have irritable bowel syndrome (IBS), no scans were done, I ended up in the emergency room (ER). I did 6 months of chemotherapy (every 3 weeks) and my CA-125 went from 9,816 to 20. Two years later my CA-125 test results began to rise and finally even though the number was only 56, a CT scan was done and showed some activity. I did chemotherapy again for 4 months, every 3 weeks. I have been on infusions of Avastin for more than 3 years to try to stop the cancer. Now my numbers are rising (95), but I had a perfectly clear PET very recently. I have a call in to my doctor, but waiting is excruciating.

Was this comment helpful?Yes
Comment from: Mieke, 65-74 Female (Patient) Published: January 08

I had a mastectomy just over 6 years ago. Recently my CA125 moved up to 95. I had a hysterectomy 30 years ago and still had my ovaries. They were removed and were clean. I had another blood test done today and hope to have the result tomorrow. I hope that the result will be normal.

Was this comment helpful?Yes
Comment from: Bellishy, 45-54 Female (Patient) Published: February 11

My CA 125 was 133 and I did not have cancer.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

CA 125 - Testing Experience Question: What was the outcome of your CA125 blood test?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors