Patient Comments: Burning Mouth Syndrome - Treatment

Question:What types of treatment did you receive for burning mouth syndrome?

Comment from: Feel the burn, 55-64 Female (Patient) Published: May 24

I have had burning mouth syndrome in the worst way for more than 6 months. A week ago my doctor told me to try biotin supplement (OTC). I also am using Biotene mouthwash. It actually is working! Try it.

Comment from: Cedaw, 45-54 Male (Patient) Published: April 27

B12 is the cure for burning mouth syndrome. Then find out why you are not absorbing B12 naturally. Get a shot or take a sublingual pill or oil form B12 vitamin 3000 units a day. It is very safe and doesn't react with other drugs. I had the same experience as many of you, went to every doctor, dentist, oral surgeon, dermatologist, etc. It was treated as a bacteria, then fungus, and then a virus; with no success. B12 it is the answer. Good luck. Educate yourself.

Comment from: Soremouth, 55-64 Female (Patient) Published: March 31

As my second year with burning mouth syndrome (BMS) draws to a close, the symptoms are intense. My first 6 months and first 6 doctors, I was told thrush was the culprit. I did alter my diet for 6 weeks with meat and vegetables only. No sugar, alcohol, or starch. This helped my figure more than my mouth but did seem to help my mouth smallest amount toward the end. Then I was told it was not thrush. The doctor prescribed a steroid rinse. Many of you have mentioned this is depressing and it is. I finally went to a more natural practice of medicine. I started BioTE hormones (yes, menopause had jumped on me which appears to be typical time for BMS to rear its ugly head) and it helped tremendously. In fact, it helped my BMS and all symptoms associated with menopause. As the time approaches for me to get my BioTE pellets implanted, I can feel it in my mouth first. Then after the new hormones were put in, my mouth would vastly improve (never normal). Unfortunately, my last time was early March and there is no relief three weeks later. I will try some of the other things mentioned on this website.

Comment from: Jin, 45-54 Female (Patient) Published: March 29

I have been diagnosed with BMS (burning mouth syndrome), 2 years now. It's miserable! I have been prescribed antidepressants, no change, the only other medication is an epilepsy drug! I have it all the time, but now and then it is raging. I don't even tell anyone any more, when they ask how I am. My next consultant appointment is in May.

Comment from: Mitzih, 65-74 Female (Patient) Published: February 15

For burning mouth syndrome I got prescribed gabapentin, 600 mg 3 times a day and 15 MG morphine extended relief every 12 hours as needed. It hasn't cured it but I get some relief. I still have very painful flare ups. I just have to learn to live with it. Sometimes I can't talk or eat for days.

Comment from: ms tips, 55-64 Female (Patient) Published: June 07

I have had burning mouth syndrome symptoms since November of 2014 and have recently discovered what has been causing this; anything with high fructose corn syrup or HFCs. Anything that has corn in the ingredients has seemingly been causing this problem for me. I have been eliminating different foods from my diet and this ingredient seems to be it; bingo! Check labels of any food or beverage that you purchase. Also, I no longer use half and half in my coffee; instead, I drink it black.

Comment from: Donna R., 55-64 Female (Patient) Published: June 07

I have suffered from burning mouth syndrome daily for the past 40 years. Sometimes it feels almost unbearable and has caused a lot of anxiety and depression. I am 64 years old and hope I can do something about it. When I talk to any doctor about it, they act like I am a nut case and dismiss it. Each doctor has told me they have never even heard of it so I tell them to google it and am still dismissed.

Comment from: Cedaw, 45-54 Male (Patient) Published: April 27

Try a sublingual B12 supplement for burning mouth syndrome. I had recurring soreness in my mouth, cheeks, and gums for over a year.

Comment from: Valerie08, Female (Patient) Published: January 28

I have had burning mouth syndrome (BMS) for about 5 years. I have been seen by my primary doctor, ENT, allergist and my dentist. I have tried the prescription mouth washes, etc. and haven't had any luck. But my dentist researched this heavily for me and found a product called alpha-lipoic acid, it is a supplement. I did not research it, as I was at my wits end, I just tried it and it helped! I was taking between 1200 mg to 2400 mg daily (I also lost weight). My mouth was so much better, it was amazing. My BMS went away. I took this supplement daily for about a month and then occasionally when my BMS would flare up. After taking alpha-lipoic acid for about a year or so, I started feeling sick to my stomach after ingesting it; so I stopped. I only take it on occasion now and never take more than 1200 mg daily. Living with BMS is absolutely horrible! Unless you suffer from it, you just have no idea of how painful it can be. I provide speech therapy, therefore I am talking all the time and when I am having a bad flare up, it takes everything out of me to do my job. I feel your pain with this awful condition. Try the alpha-lipoic acid (Sundown brand, the others did not work) and hopefully you will find some relief. Good luck!

Patient Comments

Viewers share their comments

Burning Mouth Syndrome - Signs and Symptoms Question: Describe the signs and symptoms associated with your burning mouth syndrome.
Burning Mouth Syndrome - Causes Question: If known, what was the cause of your burning mouth syndrome?
Burning Mouth Syndrome - Helpful Tips Question: Please share self-care tips for dealing with burning mouth syndrome.

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors