Patient Comments: Brain Tumor - Types

Please describe the type of brain tumor you have.

Comment from: me, 55-64 Female (Caregiver) Published: March 13

My mom was diagnosed with glioblastoma multiforme (GBM) grade IV, in her right side of the brain when she was 54 years old. She has undergone series of chemotherapy, radiation, IV therapy with Avastin and 2 craniotomies. She has left side weakness and now she is 55 years old. The last time we went to the hospital the doctor told us that nothing is working and the tumor is so aggressive that it grew again in the same spot. She gave us the option of removing it again through operation but my mom decided not to have the 3rd operation.

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Comment from: Veronica, 55-64 Female (Patient) Published: December 30

I have a tumor on my brain stem, it is inoperable. I have been told to be checked every three months to see if it is growing. I stopped checking because even if it grows, it can't be removed so why check. I have short term memory loss and I'm always trying to deny it.

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Comment from: My beloved Son, 19-24 Male (Caregiver) Published: December 13

My 20 year old son was diagnosed with a pituitary tumor the size of a ping-pong ball nine months ago. The tumor is on his pituitary gland, pressing against his optic nerve. The doctors decided not to operate because of its location (close to the Aorta); they tried to shrink it with medication (Cabergoline, Bromocriptine and Abilify). Nothing worked due to wicked side effects. He has been referred to a radiation therapist, but we are afraid of the side effects since he is very young. We are going to a neurosurgeon (a 3rd. time) in order to discuss surgery. He has a lot of headaches, ringing in the ear, and feels very week. School is over for him. He was going to school of engineering.

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Comment from: L F, 65-74 Female (Patient) Published: June 06

I am a Brit and have lived in New Zealand since 1999. I have a left petro-clival meningioma which was diagnosed and treated with 28 days radiation treatment in 2009. I also have a mid-line meningioma on the floor of the anterior cranial fossa. Both tumors are now on the annual MRI 'wait and watch' regime. I remain symptomatic for now headaches and nausea wake me in the middle of the night, and I have shooting pains in my left ear which are helped by amitriptyline. The left side of my face and scalp is very tender and I get a prickling sensation on the left side of my upper lip.

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Comment from: shelleyplew, 55-64 Female (Patient) Published: June 05

I have an inoperable brain stem tumor that is a menongioma. I want to know the prognosis of this condition. They have only offered radiation treatment to stop the growth of the tumor. Not enough is known about this condition and I was wondering if anybody out there knows of anybody who has a meningioma on the brain stem.

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Comment from: wm18, 45-54 Female (Patient) Published: June 04

I am a 46 year old woman who has a tumor in my back sinus cavity that is inoperable. I also have one on my optic nerve behind my right eye. In November 2006 I had it removed, but the doctors left 3%. I go every year for an MRI to see if it has grown. This past month I found out that the tumor has grown and doubled in size. I'm not sure what is next for me, but I am scared. I will fight it with everything I have.

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Comment from: blumen62, 45-54 Male (Caregiver) Published: March 21

My on recently turned 50 and was diagnosed w/a brain tumor, turned out to be melanoma cancer. He just finished radiation, and now starts chemo. Temodar is the pill he takes for 5 days, then off for 3 weeks. He is very healthy and athletic, so I am praying this can get him cancer free. He has a great attitude and hopefully will beat this thing. Has anyone else heard of melanoma in the brain? Doctors cannot find cancer anywhere else in or on his body.

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Comment from: kahisha, 55-64 Male (Caregiver) Published: January 24

My father has a brain tumor(pituitary) whereby he got operated at first in 2001, but soon after the operation he just lost vision and he couldn't see again, after two years they did some diagnosis and found that it started to grow again so he just got another operation in 2003, but this time things are so worse he keeps saying some imaginary things like he sees some people when he is walking even sometimes when he is alone also loss of memory and lot of problems so I was seeking for the advice if there are any medication that we may give him as I our country we don't have therapist which I think they might be a help I am from Tanzania.

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Patient Comments

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Brain Tumor - Symptoms Question: The symptoms of brain tumor can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Brain Tumor - Treatment Question: What kinds of treatment did you undergo for your brain tumor?
Brain Tumor - Surgery Question: Please describe your experience with surgery for a brain tumor.
Brain Tumor - In Children Question: Was your child diagnosed with a brain tumor? Please share your experience.

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