Patient Comments: Beta Thalassemia - Symptoms

Question:Please describe your beta thalassemia symptoms.

Comment from: Hannah, 13-18 Female (Patient) Published: December 17

I was diagnosed with beta thalassemia a year ago, and I have found that where my friends could take a matter of hours to burn off alcohol, however for me it feels like days.

Comment from: 3dmjd, 65-74 Male (Patient) Published: January 20

I was just diagnosed today that I have beta thalassemia, a minor version of it. I had a hip replaced last year and could not give my own blood for my surgery. I was not told about this disease until a few weeks ago, and then tested with the results now. I feel great and have energy, but I have not gone back to work as of yet. In two weeks I will return to work- hopefully I won't have any bad symptoms. Hope there will be a cure someday.

Comment from: fatigue, 55-64 Male (Caregiver) Published: December 16

My husband has Beta Thalassemia and he was told other than having small red cells he was to drink no alcohol. He suffers from extreme fatigue and at times cannot do even the lightest of tasks.

Comment from: proudmomma, 55-64 Female (Patient) Published: May 18

I was diagnosed recently with Beta Thalassemia Minor. Although I keep reading that I should be asymptomatic, I have always been unable to do anything aerobic. If I tried to hike or run, I would quickly get short of breath--even when I was young and healthy and working out every day.

Comment from: nikuj tejani, 13-18 Male (Patient) Published: May 12

My result of testing: negative for typical beta thalassemia minor.

Comment from: RA, 45-54 Female (Patient) Published: April 01

I have been diagnosed with having Thalassemia Minor since birth. In 2009 I undergone Liver Treatment with Chronic Hepatitis C. I was placed on the Peginterferon and Ribaviron medication. After 5 months I was very very weak. I was told by the nurse practitioner working with me ( Never once did I see or hear from the Doctor) to drive to Denver (almost 300 miles away) to speak to a Hepatologist. My daughter came with me. The Hepatlogist told me to immediately get off the treatment because it was killing off too many red blood cells. I also have nerve damage that has left me to suffer with a horrible itch. I have a new Gastroenterologist now and am scheduled to have a colonoscopy done and blood test. Thankfully, he IS upfront and honest and SPEAKS to me.

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