Patient Comments: Behcet's Syndrome - Symptoms

What were the symptoms of your Behcet's syndrome?

Comment from: AuntS, 25-34 Female (Caregiver) Published: July 12

Our nephew was diagnosed about 4 years ago. His ulcers were so bad in his mouth and gentials, and he became blind. He suffered a lot in the last 2 years and this last out break was really really bad. He died July 6 at the young age of 28. We will miss you and loved you so very much.

Was this comment helpful?Yes
Comment from: Colorado, 55-64 Female (Patient) Published: July 05

I was diagnosed with Behcets a year ago, after suffering from the red blisters on my thighs, that ulcerated and would not heal. I was also extremely sick, headaches, dizziness, and unable to stay awake for more than a few hours at a time. I have always been very physically active, but had no energy at all, I felt at one point that I was dying. I was fortunate that at this time I was actually living in the middle east, and went to a doctor who is familiar with Bahchets and its treatment. I was put on a large dose (shot) of penicillin and colchitrane for 4 months, at which time the disease went into remission. Unfortunately, it is now back, and I am no longer in the middle east. I now have some of the sores or blisters around my mouth, outside and inside and my joints are very sore.

Was this comment helpful?Yes
Comment from: Nebraska, 19-24 Male (Caregiver) Published: March 18

Our son has Behcet's Syndrome, which we already knew but had to go the the emergency room because he was throwing up blood. After being scoped he has a bleeding ucler.

Was this comment helpful?Yes
Comment from: Stevo, 35-44 Male (Patient) Published: March 15

I was diagnosed with Behcet's Syndrome about 2 months ago. Had 3 horrible episodes and having #4 right now. Awful sores in my mouth that would bleed for over a week permitting me to only drink smoothies. I would also get an awful rash which would go away after 2 weeks. Always got the outbreaks when I was sick or under the weather. Last one was so bad went to Emergency Room. Taking Colchicine now but obviously that didn't work. I have a team of doctors looking into this problem for me but honestly it simply feels like I'm on my own ( although I know this isn't true). Anyway, going to see the Dr. today and hopefully he'll give me some good news. I am frustrated and tired.

Was this comment helpful?Yes
Comment from: anonymously, 25-34 Female (Patient) Published: March 14

I was diagnosed with Behcet's syndrome on January 2010 after 5 incidents in the hospital. I usually got it after menstruation every 3 months. Symptoms: my whole body was very painful, my wrists were sore and my lips got swollen. My cheeks got red and usually after 5 hours my whole mouth was covered with blisters, sometimes I got it on my vagina also. It usually lasts a week.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Behcet's Syndrome - Effective Treatments Question: What kinds of treatment, including medication, have you found effective for Behcet's syndrome?
Behcet's Syndrome - Experience Question: Please discuss your experience with Behcet's syndrome.
Behcet's Syndrome - Diagnosis Question: How was the diagnosis of your Behcet's syndrome made?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors