Patient Comments: Behcet's Syndrome - Symptoms

What were the symptoms of your Behcet's syndrome?

Comment from: Bela, Female (Patient) Published: April 12

The level of potassium still remains low after 4 days treatment of the patient on drips for hypokalemia.

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Comment from: Abdominal pain hedac, Male (Caregiver) Published: November 17

I have pain in lower chest area, in the middle, and heavy headache and vomiting. Now I am 39 weeks pregnant. Yesterday night I had some cottage cheese food and after eating within 2 hours pain started. I am concerned it is pancreatitis.

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Comment from: Sharon, Female (Patient) Published: August 19

My gynecologist believes I may hay Behcet's syndrome due to the reoccurring sores on my tongue and the roof of my mouth along with a burning sensation at the back of my throat.

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Comment from: susanrhona, 55-64 Female (Patient) Published: May 07

I started getting mouth ulcers at around 3 years old, and as a teenager the sores got worse, I had joint trouble, and I would sprain my ankle stepping of a sidewalk. The genital sores started after my child was born, I had lesions on my head, and multiple infections. Unexplained symptoms, now I am getting more frequent genital sores. I have always had frequent mouth sores, now I have an unexplained rash between my shoulder blades, small of my back and across my stomach at waist level. It was very red and itchy for 3 days, now the itch has lessened. I am fatigued most of the time. I wonder if these might be symptoms of Behcet's syndrome.

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Comment from: Squaw227, 45-54 Female (Patient) Published: October 28

I was diagnosed with Behcet's syndrome. I've been suffering with migraines. Recently I went to my ophthalmologist and he explained my problem. The pain is always behind my left eye, then it goes to my ears and then wraps around my head. He said what's happening is my brain is swelling behind my left eye and hence the beginning of the migraine. But, lately I have ringing in my ears and it drives me crazy!

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Comment from: Carole, 55-64 Female Published: June 04

My mother had Behcet's Syndrome. My younger sister and I were so young we don't remember how she got it or when she actually got it. She initially went blind and suffered from severe headaches. She also had ulcers in her mouth and on her genitals. It was horrible watching her suffer for the 12 years that we were aware of the disease. My mother died at the ripe old age of 53. I have three siblings and none of us has Behcet's but my older sister has primary progressive MS and I have ulcerative colitis.

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Comment from: female Davis , 35-44 Female (Patient) Published: February 07

I am 42 years old and I have suffered with behcet's since the age of 6. I had mouth sores almost always as a child. I had my first vaginal ulcer at age 12. My symptoms stopped with the pregnancy of my first child. I was 18 years old then. My symptoms returned one year after the birth of my last child. I was 32 when the symptoms returned. All four of my children have been diagnosed with behcet's syndrome. To my knowledge they are the only siblings in our country. We were all diagnosed by the doctors at pediatric hospital in Nashville,TN. I no longer have mouth sores. I still have vaginal ulcer. I suffer horrible uticaria, and have psoriasis. I have suffered with migraines my entire life, and am very photosensitive. I am unable to work because of the painful hives and painful swelling above and below my joints. I have a very good MD THAT'S been very supportive. I worked till the age of 41,' and am now afraid it is time to file for disability. This scares me. All of my children so far are striving, and I've always tried to make this disease work around them.

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Behcet's Syndrome - Effective Treatments Question: What kinds of treatment, including medication, have you found effective for Behcet's syndrome?
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Behcet's Syndrome - Diagnosis Question: How was the diagnosis of your Behcet's syndrome made?

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