Patient Comments: Ankylosing Spondylitis - Treatments

What was the treatment for your ankylosing spondylitis?

Comment from: JohnO, 45-54 Male (Patient) Published: August 17

I was diagnosed at 27 years old and have been through Humira Remicade Enbrel Symphony and just about everything else. My pain is constant 4 hours a day. In August 2008 I decided no more Vioxx Celebrex and I started running. I lost 25 lbs. I haven't had any anti inflammatories except Advil in years and am running my 6th half marathon this year. It really has helped me through the pain. One doctor said don't run the other said do run. Now they think it has worked for me.

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Comment from: rcatlady64, 45-54 Female (Patient) Published: June 30

I have ankylosing spondylistis and was diagnosed in 2004, I have tried the nsaid enbryl and humaria unfortunately I'm allergic to both. I'm trying to manage it with diet and exercise, but do have inflammation of the eyes which is interfering in treatment of the eye disease I have which is cornea warping so I'm struggling with all this right now. I'm a 46 year old female, who is trying to get by, do have pain in hips, knees, spine and ankles. I do have curvature of the spine and to added to the rest of the problems was born with scoliosis.

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Comment from: mother, 25-34 Male (Caregiver) Published: April 04

My son was diagnosed at 22. He suffered the most severe pain, eventually. He was given a high dose of vitamin D, which has made all the difference. I trust this info may help some of you, as my husband suffered terribly and became totally bent over and stiff as result of the disease.

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Comment from: donegalmike, 55-64 Male (Patient) Published: March 20

I've had multiple treatments over time. I am 62 and have had two replacement surgeries of the same hip. I've also taken many anti-inflammatories, like ibuprofen, Vioxx, Voltaren, Naprosyn and currently Celebrex. I've also had physical therapy, chiropractic work and have done stretching. I occasionally take Norco for pain.

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Comment from: Sagar , 45-54 Male (Patient) Published: February 01

I am 47 years old male and medical doctor. I got the disease when I was 16 years and I am taking Nimesulide 100 mg even three times daily to cope from pain. Since 2009 I am having Iritis on and off and treating with steroid eye drop, for IBD taking antibiotics, but no cure. Getting very tired of this disease. Sagar, Nepal

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Comment from: monkey, 35-44 Female (Patient) Published: January 12

I had no problem with any kind of pain until I slipped and fell on my kitchen floor when I was 27. My Docs think I'm crazy but all my symptoms started when I fell. That's when the pain in my hip wouldn't go away after a year and half they discovered I had A.S. unreal never would of known or maybe it would of came out later in life maybe never.

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Comment from: kwilty61, 45-54 Female Published: June 20

I was diagnosed in 2008 after 3 years of going from dr. to dr. I take Enbrel, gabapentin, lyrica, naproxen. I also take flexoral and ambien so I can sleep. Otherwise the pain wakes me about every 90 min. In addition, I take tramadol ER at 4 times the normal dose, plus an extra 100mg as needed for breakthrough pain. I have had a spinal cord stimulator for pain control put in my lower back and one in my neck. I also had to have shoulder surgery. After all this, I still can only walk with forearm crutches for a very short distance and otherwise I use a scooter. On a good day I can take a load of laundry out of the dryer, on most days, I can hardly take a shower. My entire day focuses on managing my pain and mobility difficulties.

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Comment from: jc, 35-44 Male (Patient) Published: April 14

I am a 40 year old male diagnosed a.s three years ago. I've suffered since early childhood. Hip, low back, sternum, ankles, now my neck and knees oh yeah eye problems. The pain is relentless and seems to be worsening. I've found relief with humira, but no insurance. The shots are expensive even with insurance. Recently I'm using methatrexate. I also wear a duragesic patch and take oxycodone for break through pain. Seemed to help for the first year. Besides being a slave to the meds, they stop being effective. I was up all night in pain. I'm tired and want this to end. I'm sorry for all who suffer this cruel fate.

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Patient Comments

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Ankylosing Spondylitis - Symptoms Question: The symptoms of ankylosing spondylitis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Ankylosing Spondylitis - Experience Question: Please describe your experience with ankylosing spondylitis.
Ankylosing Spondylitis - Severity and Progression Question: Do you or a relative have ankylosing spondylitis? Please share its progression, along with treatments.
Ankylosing Spondylitis - Diagnosis Question: What tests led to a diagnosis of ankylosing spondylitis?

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