Patient Comments: Ankylosing Spondylitis - Treatments

What was the treatment for your ankylosing spondylitis?

Comment from: kwilty61, 45-54 Female Published: June 20

I was diagnosed in 2008 after 3 years of going from dr. to dr. I take Enbrel, gabapentin, lyrica, naproxen. I also take flexoral and ambien so I can sleep. Otherwise the pain wakes me about every 90 min. In addition, I take tramadol ER at 4 times the normal dose, plus an extra 100mg as needed for breakthrough pain. I have had a spinal cord stimulator for pain control put in my lower back and one in my neck. I also had to have shoulder surgery. After all this, I still can only walk with forearm crutches for a very short distance and otherwise I use a scooter. On a good day I can take a load of laundry out of the dryer, on most days, I can hardly take a shower. My entire day focuses on managing my pain and mobility difficulties.

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Comment from: jc, 35-44 Male (Patient) Published: April 14

I am a 40 year old male diagnosed a.s three years ago. I've suffered since early childhood. Hip, low back, sternum, ankles, now my neck and knees oh yeah eye problems. The pain is relentless and seems to be worsening. I've found relief with humira, but no insurance. The shots are expensive even with insurance. Recently I'm using methatrexate. I also wear a duragesic patch and take oxycodone for break through pain. Seemed to help for the first year. Besides being a slave to the meds, they stop being effective. I was up all night in pain. I'm tired and want this to end. I'm sorry for all who suffer this cruel fate.

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Comment from: Naise, 35-44 Male (Patient) Published: February 14

My name is Anthony and I am 37. I was diagnosed with A.S in 2000. I had herniated 4 discs in my lower back. Throughout treatment for my discs my doctor took a blood test and it was determined that I had A.S. Every day is different as far as the pain goes. Lower back stiffness in the morning and neck, lower rib pain throughout the day, all day every day. My left ear rings as well as my left eye aches. My hips feel as though they are out of socket and are in constant pain. The weather also affects me on a daily basis. I have tried most modern medicines and some eastern medical procedures as well. It's a very odd disease and I hope to get it under control.

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Comment from: Sagx, 25-34 Male (Patient) Published: February 11

I was diagnosed with AS when I was 29, male. It started in my early 20's but was told it was a torn rotator cuff. I'm now on 50mg of embrel once a week. I go to a chiropractor every 2 weeks. I try yoga a few times a month when I'm not in too much pain. Sometimes the pain is so bad I have to call in sick. This has no pattern yet every day I've found is different. I try not to do too many activities to that would aggravate the ankylosing spondylitis. I do regular stretches every half hour as directed by my dr.

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Comment from: Chee, 25-34 Female (Patient) Published: January 31

I have been on Enbrel as much as can be afforded. It has been the most effective treatment but very hard to obtain without insurance. I am currently on NSAIDS because of affordability and experiencing a lot of pain and limited range of motion. I can't get Enbrel without insurance and I can't get insurance because of my pre-existing condition. My only option at this time is pain.

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Comment from: dave williams, 45-54 Male (Patient) Published: October 31

I have found that cutting starch from diet has made a huge difference to my ankylosing spondylitis. No bread, rice, potatoes. Changed my life!

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Patient Comments

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Ankylosing Spondylitis - Symptoms Question: The symptoms of ankylosing spondylitis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Ankylosing Spondylitis - Experience Question: Please describe your experience with ankylosing spondylitis.
Ankylosing Spondylitis - Severity and Progression Question: Do you or a relative have ankylosing spondylitis? Please share its progression, along with treatments.
Ankylosing Spondylitis - Diagnosis Question: What tests led to a diagnosis of ankylosing spondylitis?

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