Patient Comments: Ankylosing Spondylitis - Treatments

What was the treatment for your ankylosing spondylitis?

Comment from: Z, 25-34 Male (Patient) Published: March 30

I injured my sacrum when I was 15. From then until my AS diagnosis at 28 my pain became progressively worse. I remember at 24, there was a spike in pain and (looking back) the start of noticeable AS symptoms. It is so embarrassing being so young and not able to move like everyone else. Or you cannot go out on Friday night because you literally cannot get out of bed. I follow the paleo diet, avoiding starch at all cost. Tremendous helper. I have also been following the Marshall Protocol for the last 6-months to treat my AS. I went from being so stiff I could barely get out of bed-to-only needing 200mg of Advil every 24 hours to keep my inflammation down and live my daily life. 1 day after starting marshall protocol, my inflammation noticeably decreased and my left Si slid back into joint when I got out of bed. Up until then, we thought it was fused.

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Comment from: citycowboy, 25-34 Male (Patient) Published: March 20

I was struck down with ankylosing spondylitis at 24. It hit me over night, the worse pain I have ever experienced. I am now 33 and still suffer chronic back pain just about every night. I am lucky to get 4 solid hours sleep a night and sometimes I just don't get any as the pain is unbearable. I saw the specialist and was put on mobic - these didn't even ease the pain, I was told about an injection (daily) and I am yet to be put on this treatment!!! I feel for anyone who goes through the pain I do, I wouldn't wish this on my worst enemy and believe me I hate the pr*ck!!!!!

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Comment from: S.Saad, 45-54 Male (Caregiver) Published: February 08

The 13 years I've been married to my husband, he's had this disease. He just found out a month ago. The great thing is, he's started on Embrel and he's a new man. He can turn his neck, he's sitting up straighter, has no pain, He moves without the stiffness he used to have, and even his bm's are normal now(he's always had diarrhea). When he told the dr. that he's having normal bms for the first time in years she tested him for chrohn's disease (which is a symptom of this disease), which came out positive. She did say she was going to change this med. for another one similar to Enbrel but is easier on the digestive track. There is hope! I'm so excited that my husband can move again without pain!

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Comment from: forester, 45-54 Female (Patient) Published: January 19

First symptoms when I was 22. self-treated symptoms w/ ibuprofen. Diagnosis at 33. Lucky to have the best rheumatologist in the state. Started with Rx NSAIDS but had stomach problems, plus they lose effectiveness after a while. Now on Remicade. Have had arthroscopy on two shoulders and one hip. Been down many times but I keep getting up! At 49 I still work as a forester on rough ground. I still camp. KEEP MOVING, KEEP STRETCHING, don't let anyone tell you no.

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Comment from: no break in pain, 25-34 Female (Patient) Published: November 30

I am 33 year old female who wasn't diagnosed until I was 22 years old. Symptoms started when I was 16. In the beginning doctors tried steroid injections and pain pills. Today they use steroids when I have a really bad flare up, naproxen twice a day, pain pills 6 times a day, Humira once every other week, muscle relaxers, and I try to go to physical therapy but most days are too painful. I also have the eye inflammation and fusion has already started in my back and ribs. I'm a single mom and most days I'm so tired I can't do anything, but what I have to for my children. My neck hurts so bad that I can barely turn to look at anything. X-rays don't show any damage there yet but I'm waiting because I know it's happening. I lost my insurance and my doctor helped me be able to stay on humira by writing the maker. Hope this helps someone else who's struggling to make ends meet and just trying to feel better with whatever they can. :)

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Comment from: pammyb, 25-34 Female (Patient) Published: November 08

I am a 28 year old nurse, diagnosed about 2 years ago with AS. I have had pain since I was 17 slowly increasing to the point I could not walk. Once diagnosed, I was prescribed naproxen that did not work for long, then celebrex for about 6 months twice a day. I am now on the mobicox and seems to work well, exercising regularly and a lot of stretching seems to help. For those who don't want to take a lot of medications, research foods that decrease inflammation or increase. Tumeric is great for joint pain and also sweet potatoes or yams have one of the highest anti-inflammatory scales. Try incorporating them a few times a week. I have found adjusting my diet, quitting smoking, biking or swimming can really help with physiotherapy; chiropractic (no adjustments, just pressure release) and massage have all be blessings. I have more good days now then bad, and able to manage much better. Keep moving!

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Ankylosing Spondylitis - Symptoms Question: The symptoms of ankylosing spondylitis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Ankylosing Spondylitis - Experience Question: Please describe your experience with ankylosing spondylitis.
Ankylosing Spondylitis - Severity and Progression Question: Do you or a relative have ankylosing spondylitis? Please share its progression, along with treatments.
Ankylosing Spondylitis - Diagnosis Question: What tests led to a diagnosis of ankylosing spondylitis?

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