Patient Comments: Anaphylaxis - Describe Your Experience

Please describe your experience with anaphylaxis

Comment from: Mamabear, 19-24 Female (Caregiver) Published: September 10

My son is 19 and he has been having panic attacks for the past year. They are continuing to get worse. I ran across this site by accident and read the part about exercising. He has been lifting weight vigorously for the past 6 months and the only thing that seems to help him is Phenergan which is what I was trying to research using it as when having an allergic reaction. He does not break out in hives, but it is usually around the time he eats or after he exercises. His meals have change from white bread to wheat and only wheat product, whey protein shakes etc. and he has actually lost 80 pounds since December. I would like any feedback on this because no one will listen to anything else other than it has to be panic attacks and he is losing his life.

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Comment from: T, 35-44 Female (Patient) Published: August 25

I've had four major incidents of anaphylaxis, all of them very scary. During one incident, I was already preparing myself to die when the doctor finally decided to give me the adrenalin shot I had asked for from the time I ran into the emergency room. I've been told by a friend who is a doctor that there was no way they would have taken me seriously, as I ran in by myself and could still speak, although I was saying I couldn't breathe. My friend told me I should have been conserving the little air I could get in instead of shouting like I was doing, but I wanted to get someone's attention to my plight as soon as possible before I was unable to speak at all. Doctors don't listen very well. I now carry Epipen and wear a Medic Alert bracelet.

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Comment from: nancy, 35-44 Female (Patient) Published: August 19

I was visiting my Grandma in a hospital. After being there about 45 minutes I felt sick to my stomach, then I started to see stars like I was going to pass out and then became flush, hot and sweaty. This happened all within minutes. I began to feel my nasal cavity begin to swell inside my mouth. I excused my self to my family and left the hospital within a couple of miles of the hospital the symptoms began to disappear. Was this some type of allergic reaction to something in the air at the hospital? I do have other not so intense allergies like hay fever, milk and drugs like Ceclor.

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Comment from: littlefolks, 35-44 Female (Patient) Published: August 19

On August 9, I experienced Anaphylaxis for the first and I hope the last time. I was bitten (stung) by a yellow jacket. About 4-5 minutes later I began to feel faint. I was hot yet I had cold chills. My heart was racing and I began to feel short of breath. I had never been allergic to anything therefore had never experienced anything like this. I called my doctor and she had me call 911. I received an Epinephrine injection and an oral medication. Once my symptoms began to subside the doctor suggested that I lay in the dark and relax for 20 more minutes to help everything cease. She then told me to go home and get in the bed and relax for the rest of the day. This was a very bad experience and I hope that I never have to go through it again. If I do, I am prepared. I now carry an EpiPen where ever I go.

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Comment from: juliaATdfl, 55-64 Female (Patient) Published: October 21

I developed an allergy to the allium (onion) family three years ago. I have a severe sensitivity and will react to the inhalation of the allergen. My symptoms have been diagnosed by an immunologist as anaphylactic. I become confused, disconnected, have blurred vision and a drop in blood pressure causing collapse. If ingested, my tongue feels burned; my lips, face, and nose swell; I get asthma; and I get a sense that my vocal chords have been seized. I might itch intensely under the skin, but I have no hives. With a bad reaction, my limbs feel heavy, and fluid streams from eyes and nose. I have no sense of impending doom. I respond well to adrenaline and oxygen and find additional IV fluids very helpful. I carry four EpiPens, steroids, liquid antihistamines and wear a Medi Alert bracelet.

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Comment from: Bubbles, 35-44 Female (Patient) Published: October 21

I actually had an anaphylactic reaction while getting allergy testing done. After the first 20 were given to me I started having a flushed, warm feeling. I then became itchy to my ears, eyes and throat. My skin was cool, pale, and clammy. My blood pressure dropped to 90/50. Within three to four minutes I started having intense abdominal and uterine cramps. Every time I sat up I was feeling faint. I was extremely nauseous. The ENT doctor called it a vagal reaction, but I insisted on 911 since he refused to give me Epipen or Benadryl. Once I arrived to the ER I had hives from my head to my pelvic area, my chest was bright red and I was extremely anxious. I am so glad I sought higher medical attention because I felt like I was going to die in that doctor's office.

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Patient Comments

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Anaphylaxis - Causes Question: Do you know what caused your anaphylaxis? Share your experience.
Anaphylaxis - Diagnosis Question: Discuss the events that led to a diagnosis of anaphylaxis.
Anaphylaxis - Prevention Question: If you've experienced anaphylaxis, how do you prevent another occurrence?
Anaphylaxis - Symptoms and Signs Question: What symptoms and signs did you experience with your anaphylaxis?

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