Patient Comments: ALS - Treatment

Have you or someone you know tried riluzole? Please discuss your experience.

Comment from: Tracy, 65-74 Female (Caregiver) Published: July 24

My mother was diagnosed with ALS in May 2008. Her doctor put her on riluzole, letting her know there was no cure but the medication might provide her a few more months of delayed symptoms. ALS progresses at different rates and affects different body parts first. My mother, being 73 at the time, fell into a category of what they call "fast progression" (older female). Her arms weakened first, then her hands, her mouth, and throat, and finally her lungs. Throughout her two-and-a-half-year ordeal, she was able to walk with assistance until the last two weeks of her life. All the while she continued to take the riluzole. If it bought my mother any time, we will never know. Her neurologist told us that if she couldn't afford it, there was no real need to take it.

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