My uncle (my mom's brother) was recently diagnosed with amyloidosis at age 68. I saw him a year ago and he was having trouble walking and at one point fell outside our house, cut his leg on something which caused a massive gash. At that time we did not know what was wrong with him only that he was experiencing multiple symptoms but could not get any kind of affirmative diagnosis. My mother, now age 60 saw a neurologist yesterday and was told that due to the symptoms she experiences (weakness in hands and arms, severe abdominal pain other intestinal problems, weakness in legs, blood pressure dropping after standing up, and even a few more) that it is extremely likely that she has the disease as well. She is being tested for it in 2 more days. And now there is myself. I am 36 and have all of the symptoms my mother has. If she is diagnosed with the disease I, along with my 2 siblings will need to be tested as well. I am almost convinced I have it even at my age. I'm very afraid to be honest. I'm a single mother of an 11 year old girl whose father is uninvolved. This would leave her practically an orphan if I were to pass away soon. That is my greatest fear.

My father in law was diagnosed with amyloidosis in 2011. His first symptoms were fatigue, anxiety, depression like symptoms, and pain in his hands and legs. It moved on quickly to overall weakness and he began falling. He had severe digestive disruption which caused him to lose 50 pounds in a few months. They did carpel tunnel surgery, removed his gallbladder, and did many tests with several doctors without successful diagnosis. The neurologist that he saw basically said that the symptoms were due to severe anxiety and depression. Finally he went to the Mayo Clinic and they diagnosed him within 2 weeks. He died exactly 1 week after diagnosis, just 2 months past his 50th birthday. From the time he began seeing doctors about his "vague" symptoms until he passed away was only about 8 months.

My husband was diagnosed with amyloidosis in one blood cell thru a bone marrow biopsy. We don't know what to do now. He keeps having blood work and they keep saying he has this from the number of proteins. He has no strength in his arms, a lot of pain in his back. He had carpal tunnel surgery for 1 of his wrists; they did a tissue biopsy then and said if it was negative for amyloids. He just feels very old (he is 70) because he can't do a lot of things. You would never know he is 70 to look at him. We are at a loss of what to do.

my doctor diagnosed my skin disease as amyloidosis and she wanted me to go on several biopsies but due to financial problems we haven't done it yet. I have read your information on amyloidosis and it is very informative and now i have more knowledge on how to handle it. Ten years ago, i was operated for multiple gallstones, they've taken 31 stones and found it very unusual. Now, i'm suffering fatigue, i have hypertension and some kidney problem. I have skin nodules from head to foot and it's getting worse as i get older. Thank you so much...

My father was diagnosed with the disease 14 years ago. He went to several different doctors and hospitals, who told him there was no hope. We almost gave up, but went to a hospital that performed a stem cell transplant using my father's own stem cells. It was a success! It was a long haul for my dad, but he was to lead a better life. He did have some kidney issues as a result of the disease, and after 14 years he had to go on dialysis, at age 80. I lost my dad 6 months ago. He was a true fighter and a hero in my eyes. But the stem cell transplant gave me a gift.

Probiotics are a relatively unknown cure for diarrhea. These replenish the intestinal tract with healthy flora and cause elimination or decrease of diarrhea. I've seen it work.