Alzheimer's Disease Patient Caregiver Guide (cont.)

For More Information on Alzheimer's Disease

Several organizations offer information for caregivers about Alzheimer's disease. To learn more about support groups, services, research, and additional publications, you may wish to contact the following:

Alzheimer's Disease Education & Referral (ADEAR) Center
P.O. Box 8250
Silver Spring, MD 20907-8250
1-800-438-4380
301-495-3334 (fax)
Web address: www.alzheimers.nia.nih.gov
E-mail address: adear@nia.nih.gov

This service of the National Institute on Aging is funded by the Federal Government. It offers information and publications on diagnosis, treatment, patient care, caregiver needs, long-term care, education and training, and research related to AD. Staff answer telephone and written requests and make referrals to local and national resources. Publications and videos can be ordered through the ADEAR Center or via the website.

Alzheimer's Association
225 North Michigan Avenue
Suite 1700
Chicago, IL 60601-7633
1-800-272-3900
Web address: www.alz.org

This nonprofit association supports families and caregivers of patients with AD. Chapters provide referrals to local resources and services, and sponsor support groups and educational programs. Online and print versions of publications are also available at the website.

Children of Aging Parents
P.O. Box 167
Richboro, PA 18954
1-800-227-7294
Web address: www.caps4caregivers.org

This nonprofit group provides information and materials for adult children caring for their older parents. Caregivers of people with Alzheimer's disease also may find this information helpful.

Eldercare Locator
1-800-677-1116
Web address: www.eldercare.gov

The Eldercare Locator is a nationwide, directory assistance service helping older people and their caregivers locate local support and resources for older Americans. It is funded by the Administration on Aging (AoA). The AoA's Alzheimer's Resource Room is located at www.aoa.gov. It has information on caregiving, working with and providing services to people with AD, and where to look for support and assistance.

Family Caregiver Alliance
180 Montgomery Street
Suite 1100
San Francisco, CA 94104
1-800-445-8106
Web address: www.caregiver.org

Family Caregiver Alliance is a community-based nonprofit organization offering support services for those caring for adults with AD, stroke, traumatic brain injuries, and other cognitive disorders. Programs and services include an information clearinghouse for FCA's publications.

The National Institute on Aging Information Center
P.O. Box 8057
1-800-222-2225
1-800-222-4225 (TTY)
Web address: www.nia.nih.gov

The National Institute on Aging (NIA) offers a variety of information about health and aging. To order publications (in English or Spanish) or sign up for regular e-mail alerts, visit www.nia.nih.gov/HealthInformation. Visit NIHSeniorHealth.gov (www.nihseniorhealth.gov), a senior-friendly website from the NIA and the National Library of Medicine. This website has health information for older adults. There are special features that make it simple to use. For example, you can click on a button to have the text read out loud or to make the type larger.

The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL 60091
1-800-237-4666
Web address: www.simonfoundation.org

The Simon Foundation for Continence helps individuals with incontinence, their families, and the health professionals who provide their care. The Foundation provides books, pamphlets, tapes, self-help groups, and other resources.

Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07788
1-800-838-0879
Web address: www.wellspouse.org

Well Spouse is a nonprofit membership organization that gives support to wives, husbands, and partners of the chronically ill and/or disabled. Well Spouse publishes the bimonthly newsletter, Mainstay.

March 2007

SOURCE: National Institute on Aging, National Institutes of Health

Last Editorial Review: 8/26/2008

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