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home > alzheimer's center > alzheimer's a-z list > alzheimer's disease patient caregiver guide index > alzheimer's disease patient caregiver guide article

Alzheimer's Disease Patient Caregiver Guide (cont.)

For More Information on Alzheimer's Disease

Many organizations offer information for caregivers. To learn more about support groups, services, research, and additional publications, you may wish to contact the following:

Alzheimer's Disease Education & Referral (ADEAR) Center
P.O. Box 8250
Silver Spring, MD 20907-8250
1-800-438-4380
Web address: www.nia.nih.gov/Alzheimers

The National Institute on Aging's ADEAR Center offers information and publications for families, caregivers, and professionals on diagnosis, treatment, patient care, caregiver needs, long-term care, education and training, and research related to Alzheimer's disease. Staff members answer telephone, email, and written requests and make referrals to local and national resources. The ADEAR website offers free, online publications in English and Spanish; email alert and online Connections newsletter subscriptions; an Alzheimer's disease clinical trials database; the Alzheimer's Disease Library database; and more.

Alzheimer's Association
225 North Michigan Avenue
Suite 1700
Chicago, IL 60601-7633
1-800-272-3900
Web address: www.alz.org

The Alzheimer's Association is a national, nonprofit association with a network of local chapters that provide education and support for people diagnosed with Alzheimer's disease, their families, and caregivers. The Association also supports research on Alzheimer's.

Alzheimer's Foundation of America
322 Eighth Avenue, 7th Floor
New York, NY 10001
1-866-232-8484 (toll-free)
www.alzfdn.org

The Alzheimer's Foundation of America provides care and services to individuals confronting dementia and to their caregivers and families through member organizations dedicated to improving quality of life. Services include a toll-free hotline, consumer publications and other educational materials, and conferences and workshops.

Children of Aging Parents
P.O. Box 167
Richboro, PA 18954
1-800-227-7294
Web address: www.caps4caregivers.org

This nonprofit group provides information and materials for adult children caring for their older parents. Caregivers of people with Alzheimer's disease also may find this information helpful.

Eldercare Locator
1-800-677-1116
Web address: www.eldercare.gov

Eldercare Locator is a nationwide directory-assistance service helping older people and their caregivers locate local support and resources. It is funded by the U.S. Administration on Aging (AoA). AoA's website at www.aoa.gov offers information about caregiving, working with and providing services to people with Alzheimer's, and where to look for support and assistance.

Family Caregiver Alliance
180 Montgomery Street
Suite 1100
San Francisco, CA 94104
1-800-445-8106
Web address: www.caregiver.org

Family Caregiver Alliance is a nonprofit organization that offers support services and information for people caring for adults with Alzheimer's, stroke, traumatic brain injuries, and other cognitive disorders. Programs and services include an information clearinghouse for FCA's publications.

The National Institute on Aging Information Center
P.O. Box 8057
1-800-222-2225
1-800-222-4225 (TTY)
Web address: www.nia.nih.gov

The NIA Information Center offers a variety of information about health and aging. To order publications in English or Spanish or to sign up for regular email alerts, visit www.nia.nih.gov/HealthInformation. Visit NIHSeniorHealth (www.nihseniorhealth.gov), a senior-friendly website from NIA and the National Library of Medicine. This website has health information for older adults. Special features make it simple to use. For example, you can click on a button to have the text read out loud or to make the type larger.

National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
1-800-896-3650 (toll-free)
www.thefamilycaregiver.org

The National Family Caregivers Association helps educate and support people who care for loved ones with chronic illness, disability, or the frailties of old age. The Association offers an online library of information and educational materials, workshops, and other resources.

National Hospice and Palliative Care Organization
1731 King Street, Suite 100
Alexandria, VA 22314
1-800-658-8898 (toll-free)
www.nhpco.org

This nonprofit organization works to enhance the quality of life for people who are terminally ill. It provides information, resources, and referrals to local hospice services and offers publications and online resources.

The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL 60091
1-800-237-4666
Web address: www.simonfoundation.org

The Simon Foundation for Continence helps individuals with incontinence, their families, and the health professionals who provide their care. The Foundation provides books, pamphlets, tapes, self-help groups, and other resources.

Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07788
1-800-838-0879
Web address: www.wellspouse.org

This nonprofit membership organization gives support to spouses and partners of the chronically ill and/or disabled. It offers support groups and a newsletter.

The National Institute on Aging gratefully acknowledges the following Alzheimer's Disease Centers for their valuable contributions of information in preparation of this Caregiver Guide:

  • Duke University Joseph and Kathleen Bryan Alzheimer's Disease Research Center

  • The Johns Hopkins University Alzheimer's Disease Center

SOURCE: National Institute on Aging, National Institutes of Health. Caregiving Guide.
<http://www.nia.nih.gov/Alzheimers/Publications/caregiverguide.htm>


Last Editorial Review: 7/27/2010



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Suggested Reading on Alzheimer's Disease Patient Caregiver Guide by Our Doctors

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