Alzheimer's Disease Patient Caregiver Guide (cont.)
In this Article
For More Information on Alzheimer's Disease
Many organizations offer information for caregivers. To learn more about support groups, services, research, and additional publications, you may wish to contact the following:
Alzheimer's Disease Education & Referral (ADEAR) Center
The National Institute on Aging's ADEAR Center offers information and publications for families, caregivers, and professionals on diagnosis, treatment, patient care, caregiver needs, long-term care, education and training, and research related to Alzheimer's disease. Staff members answer telephone, email, and written requests and make referrals to local and national resources. The ADEAR website offers free, online publications in English and Spanish; email alert and online Connections newsletter subscriptions; an Alzheimer's disease clinical trials database; the Alzheimer's Disease Library database; and more.
The Alzheimer's Association is a national, nonprofit association with a network of local chapters that provide education and support for people diagnosed with Alzheimer's disease, their families, and caregivers. The Association also supports research on Alzheimer's.
Alzheimer's Foundation of America
The Alzheimer's Foundation of America provides care and services to individuals confronting dementia and to their caregivers and families through member organizations dedicated to improving quality of life. Services include a toll-free hotline, consumer publications and other educational materials, and conferences and workshops.
Children of Aging Parents
This nonprofit group provides information and materials for adult children caring for their older parents. Caregivers of people with Alzheimer's disease also may find this information helpful.
Eldercare Locator is a nationwide directory-assistance service helping older people and their caregivers locate local support and resources. It is funded by the U.S. Administration on Aging (AoA). AoA's website at www.aoa.gov offers information about caregiving, working with and providing services to people with Alzheimer's, and where to look for support and assistance.
Family Caregiver Alliance
Family Caregiver Alliance is a nonprofit organization that offers support services and information for people caring for adults with Alzheimer's, stroke, traumatic brain injuries, and other cognitive disorders. Programs and services include an information clearinghouse for FCA's publications.
The National Institute on Aging Information Center
The NIA Information Center offers a variety of information about health and aging. To order publications in English or Spanish or to sign up for regular email alerts, visit www.nia.nih.gov/HealthInformation. Visit NIHSeniorHealth (www.nihseniorhealth.gov), a senior-friendly website from NIA and the National Library of Medicine. This website has health information for older adults. Special features make it simple to use. For example, you can click on a button to have the text read out loud or to make the type larger.
National Family Caregivers Association
The National Family Caregivers Association helps educate and support people who care for loved ones with chronic illness, disability, or the frailties of old age. The Association offers an online library of information and educational materials, workshops, and other resources.
National Hospice and Palliative Care Organization
This nonprofit organization works to enhance the quality of life for people who are terminally ill. It provides information, resources, and referrals to local hospice services and offers publications and online resources.
The Simon Foundation for Continence
The Simon Foundation for Continence helps individuals with incontinence, their families, and the health professionals who provide their care. The Foundation provides books, pamphlets, tapes, self-help groups, and other resources.
Well Spouse Association
This nonprofit membership organization gives support to spouses and partners of the chronically ill and/or disabled. It offers support groups and a newsletter.
The National Institute on Aging gratefully acknowledges the following Alzheimer's Disease Centers for their valuable contributions of information in preparation of this Caregiver Guide:
Medically reviewed by Jon Glass, MD; American board of Psychiatry and Neurology
Medically Reviewed by a Doctor on 3/26/2014
Viewers share their comments
Alzheimer's Disease Patient Caregiver - Experience Question: Please describe your experience with an Alzheimer's disease patient.
Alzheimer's Disease Patient Caregiver Guide - Diagnosis Question: Has a friend or relative been diagnosed with Alzheimer's? Please share your story.
Alzheimer's Disease Patient Caregiver Guide - Communicating Question: Please share tips for communicating with a relative or friend who has Alzheimer's.
Alzheimer's Disease Patient Caregiver Guide - Eating Question: Getting an Alzheimer's patient to eat can be difficult. Please share tips for meal ideas and routines.
Alzheimer's Disease Patient Caregiver Guide - Activities Question: In what ways do you help your friend or loved one with Alzheimer's stay active and engaged?
Alzheimer's Disease Patient Caregiver Guide - Sleeping Question: Do you deal with a restless Alzheimer's patient? How do you make sure he/she gets sleep at night?
Alzheimer's Disease Patient Caregiver Guide - Wandering Question: Alzheimer's patients tend to wander. What steps have you taken to ensure his/her safety?
Alzheimer's Disease Patient Caregiver Guide - Nursing Homes Question: At some point an Alzheimer's patient will need assisted or residential care. How did you select one?