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November 21, 2009
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Patient Discussions: Alzheimer's Disease - Describe Your Experience

Alzheimer's Disease - Describe Your Experience

The MedicineNet physician editors ask:

Please describe the symptoms you or loved one experienced with Alzheimer's disease.

Comment submissions for this question have ended. Patient Discussions FAQs


Related Article: Alzheimer's Disease

The following Patient Discussions have not been medically reviewed. See additional information.



Comment from: concerned, 45-54 Female (Caregiver)

My father used to be a very talkative man. He is now 87 years old, and he forgets many things. He repeatedly asks to go home. He wants to plant his garden. My mother was taking care of him until recently when she was trying to get in the car and the door was stuck in the snow bank, and she told him to wait while she shut the door. He didn't wait and knocked her over, breaking her hip. He got out of the car and asked what she was doing on the ground. She told him she had asked him to wait until she shut the door; he yelled at her and said she was lying. He was taking junk mail to his banker thinking it was important papers, and meanwhile, he was throwing the important papers away. He was sending money to everybody that he got junk mail from. Most of the family is quite a distance from my dad and caring for him at home has become impossible for my mother. He doesn't remember from day to day what is going on, doesn't remember to eat, doesn't remember to do his personal cares. Tells everyone that he should still be able to drive but doesn't remember where he lived for 42 years. This is the most awful disease I have had to deal with. How frustrating for him it must be that you know you know something but can't remember it. He has now started to wander away from the assisted-living facility and is angry at everyone. He said his family is out to get him. I only hope the good Lord gives us all the strength to deal with this -- especially my father. Published: May 07 ::

Comment from: Ann, 65-74 Male (Caregiver)

This is what happened in my case. I have been in a long-term relationship with someone who always seemed a little eccentric anyway, which was part of his charm! But, little by little, he was less able to cope with banking, keeping a checkbook, and began cashing pension/disability checks and losing the cash before even getting home. He continually lost his wallet, check book, keys, money and we both spent countless hours searching for things. Still, we racked it up to fallout from chemo and radiation treatments several years past. We had reason to believe that his need for a pacemaker and his deteriorating hearing, and increased floaters and debris in the eye gel where all from the cancer treatment. Maybe they were, but about six months ago, he was involved in a court case that found him on the losing end, and he almost lost his beloved home. It was recovered, but the angst and anger he felt over the whole thing seemed to trigger a decline that spiraled into more symptoms within six months that led him to get lost while driving, and to cry at the drop of a hat. Since he had been a tall, robust rowdy kind of guy in his youth, it was heartbreaking to me to see him hunched over, walking precariously, unsteadily, and rambling in his speech, constantly retelling stories from his early 20s when he was in the military. I was annoyed and impatient, and our love life was a chore, not a joy. If only I had taken the time to research Alzheimer’s (I knew his dad had it), but I was so busy semi-caretaking my elderly mother, working a full time job, commuting in a metropolitan area, and now taking on more and more of my best friend's control of his life. He resented it and me ... and left. In doing so, he got disoriented and lost, and ended up in a hospital 60 miles away. He's there now with a family member who is in charge of his care, and we're waiting to see if anything can be done to slow the progression of his dementia ... or discover if his cancer has returned. Fortunately, his retired income can enable him to be in an assisted living facility, but I never thought to lose him so soon. If only, if only, if only someone had whacked me on the head hard and said, "Hey, wake up! He is in trouble! Get him checked out." I will say again though, that I began trying many months ago to get him to see a neurologist, and he kept saying he would ... later. If anyone reading this needs a "whack on the head," let this be it! Published: May 07 ::

Comment from: skeeter01, 35-44 Female

I was engaged to a man I worked with. He was in incredible physical shape, worked offshore, and was a very talented musician. After living with him for three months, it became very clear that something was very wrong. He had had a hip replacement surgery, and he told me the surgeons told him the medication they gave him during surgery would cause short-term memory loss. Well, a year later, he still had memory loss. I tried to get him to go to the doctor, but it didn't work. (Just give it some more time!) He could not handle his finances, nor make decisions. His teenagers would let him know in advance of their weekend plans, but he would forget and yell at them for not keeping him informed. He was 50 years old and had no known history of Alzheimer's in his family. I broke the engagement because I didn't quite understand what was going on and because one night he became physical and I couldn't control him.) His son called me to tell me that his dad had been officially diagnosed with Alzheimer’s disease. I feel guilty that I didn't figure that out, but I didn't realize that someone his age could get it too! Thank God, he has other family to take care of him, because I left. Pay attention to the younger people too! Published: May 07 ::

Comment from: ritamco, 65-74 Female (Caregiver)

I just came out of a relationship with a 70-year-old man (I am 11 years younger). I am sure he has the beginning symptoms of Alzheimer’s and my life/our relationship got drained by it (not that I did not love him, or did not want to take care of him). I started to realize very disturbing patterns early on: yelling fits for no reason, then asking me three days in a row the same question about a building while we were visiting Brussels. When I would say, "I already told you," he would start yelling at me. There were so many other signs: buying the same books (not remembering having it at home), not remembering when pills were taken, not remembering even that a certain book I asked him to read was given to him by one of his best friends for his birthday only a couple of weeks earlier. I reminded him constantly of appointments, calls to make, and where he had placed stuff he could not find. (We lived in the Village in a tiny apartment.) I was a "new" girlfriend, so it was very delicate. I could not talk to his children about this, nor to his brother because he was convinced there was absolutely nothing wrong with him. If I dared bring up the subject, I would receive another yelling fit with abusive language. Published: March 03 ::


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Caring for a person with Alzheimer's disease (AD) at home is a difficult task and can become overwhelming at times. Each day brings new challenges as the caregiver copes with changing levels of ability and new patterns of behavior. Research has shown that caregivers themselves often are at increased risk for depression and illness, especially if they do not receive adequate support from family, friends, and the community.

One of the biggest struggles caregivers face is dealing with the difficult behaviors of the person they are caring for. Dressing, bathing, eating - basic activities of daily living - often become difficult to manage for both the person with Alzheimer's disease and the caregiver. Having a plan for getting through the day can help caregivers cope. Many caregivers have found it helpful to use strategies for dealing with difficult behaviors and stressful situations. Through...

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