Patient Comments: Addison's Disease - Treatments

What was the treatment for your Addison's disease?

Comment from: Jules, 45-54 Female (Patient) Published: November 13

I was diagnosed 3 years ago with Addison's disease. I frequently, every 3 to 4 weeks visit my local hospital for fluid, lots of fluid! I find even with all these medications I take daily, stomach pains, vomiting, nausea, and diarrhea are still very prevalent in my life. My weight goes mental, up and down constantly but never reaching my goal of 70 kg. I'm tired all the time, am very dark, and still not a good sleeper! I can honestly admit I don't want to live with this horrible disease for the rest of my life! I want to be 72 kg, fit healthy sporty woman I was 4 year ago!

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Comment from: Tricia19, 65-74 Female (Patient) Published: October 01

I was diagnosed with Addison's disease two years ago and even as a nurse, did not realize what was wrong with me. Apparently as I had TB as a child, this was the cause of Addison's. Last year I was in hospital five times, but this year I seem to be more in control. I am 5' 2' and keep my weight at 52/53 kg, it's hard sometimes.

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Comment from: Addisonsurvivor, 13-18 Male (Caregiver) Published: March 07

My 14 year old son got sick and was diagnosed with adenovirus. Doctors said it was like Mono. He was hospitalized and given fluids even though he had no diarrhea or vomiting. His condition worsened. He could not sit or stand for very long. His blood pressure would drop for no apparent reason. He was very weak, and he craved salty foods. He lost 29 pounds over 10 weeks. His blood pressure would drop for no apparent reason. His skin darkened, especially his freckles and moles, they turned black. His speech was slurred, and he at times was confused. They were testing him for brain tumors and cancers. My friend's daughter (Brandi) passed away a few years ago and she thinks it was undiagnosed Addison's. I informed the doctors, and my son has it! He has been taking hydrocortisone and fludrocortisone for the past week. He is doing great!!!!

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Comment from: Kat Mac, 45-54 Female Published: February 13

I was in my early 30's when I couldn't keep a conversation while walking on the treadmill. I just wrote it off. During the next 6 months it was like I was dying a slow painful death. While I was getting ready in the mornings, I couldn't stand up straight as I was out of breath (orthostatic hypertension). I had to bend over while showering and sit in a chair putting my make up on and drying my hair. I just hoped I didn't "drop" any of my patients as I was still doing my physical therapy job. I went to the doctor weekly telling her, I am not right, something is wrong with me." My journal entries during those days were dark. Ie," God if this is living, take me Home." This went on from October of 1 year until April of the next year I went to the ER, my BP was 50/30; my hemoglobin was 5 ( it should be around 14). I was knocking on death's door. Medications gave me life back, but still I had to learn how to "self-manage" my Addisonian crisis's. No one teaches you this. That was 15 years ago and living a great life.

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Comment from: TagMan49, (Caregiver) Published: September 17

If you are out of options with the medical fraternity then I suggest looking at homeopathy, or find someone who is using the Indigo biofeedback machine. Those things can be amazing at rooting out the real issues

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Comment from: chancy, 25-34 Male (Patient) Published: January 31

I was diagnosed with Addison's at age 20 after almost 6 years of significant signs, symptoms, and times of crisis. I was told by several doctors over the years that I was just dehydrated and depressed. I have even been called a hypochondriac. My mom actually found it online and had the doctor run an ACT test on me and my levels were 1400. I have since been diagnosed with polyendocrine failure: addison's, hypothyroidism, cardiomyopathy. I'm on an aldosterone replacement. Have your doctor check this level if you crave salt, and a testosterone injection as well. I take OTC DHEA and it seems to help with my testosterone level. It has been almost 5 years since I was diagnosed and I still to this day struggle frequently to do the things a normal person can do but it doesn't stop me from pushing my limits.

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Addison's Disease - Symptoms Question: What were your symptoms at the onset of your Addison's disease?
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Addison's Disease - Causes Question: If known, what was the cause of Addison's disease in you or a relative?

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