Patient Comments: Achalasia - Describe Your Experience

Please describe your experience with achalasia.

Comment from: Rzbuddz24, 25-34 Female (Patient) Published: January 30

I have been suffering from achalasia for two years. It started about two weeks after having my daughter. When it was triggered, I have gone days without eating or drinking anything. I went though the tests about nine months ago after being seen in the emergency room for food impaction in my esophagus. For more than a year they treated me for acid reflux, heartburn, and nausea. No one seemed to understand what I was saying. I found a great doctor at University of California, Irvine. They redid the test and recommended a Heller myotomy. I had the procedure last week. I am still in recovery with liquid diet, then pureed food, then soft foods. I am having severe heart burn about every other day, which had gone away for about eight months before the surgery.

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Comment from: 19-24 Female (Patient) Published: January 30

I was diagnosed with achalasia when I was 8 or 9 years old after suffering symptoms for a couple years. It started with difficulty swallowing and progressed to regurgitation, chest pain, and eventually food coming back up through my nose at night. I had two Botox injections, which helped for a year or two then finally had the Heller myotomy. I am now 23, and my food stays down, but I absolutely depend on water to swallow anything. I frequently get chest pains, which seem to be stress-induced.

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Comment from: Judog from london, 25-34 Female (Patient) Published: December 17

I just left the hospital this evening after having an endoscopy. I had a barium swallow also last week. The doctor that did the endoscopy really thinks I have achalasia and the bill fits because I have had this serious swallowing condition for 11 years now. I find it horribly difficult to swallow both liquids and solids. I feel an acute pain in my chest and back and I only get relief after I have taken a few sips of water. When I eat, (every single time I do) I feel the food is stuck in my throat and sometimes it feels like I can't breathe. I need mouthfuls of water to forcefully push the food down and it takes over 20 seconds of me pushing hard, swallowing repeatedly before the food now feel likes its gone down and most times I actually hear the food drop with a thud into my stomach. Its harrowing, it feel like I am abnormal and I wonder if I can go on like this but I am glad now that a diagnosis has been made and we'd see what method of treatment and management they are willing to give me. I am sure I will get something done before January is over. Thank you for this opportunity to share my story

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Comment from: ukkate, 55-64 Female (Patient) Published: December 17

I was first diagnosed about 3 years ago. My symptoms were pain and a feeling of 'blockage' in my throat when swallowing and regurgitation of food and liquids, especially at night when asleep. I had a Botox injection treatment which worked wonderfully for about a year. It was painless, an outpatient procedure and I was home in 2 hours. When my symptoms reappeared I called the doctor and was scheduled for a second treatment, which also was problem-free. That was 2 years ago and unfortunately I am experiencing symptoms again. I have difficulty swallowing, pain and discomfort and occasional throwing up. The most scary is the regurgitation at night when I wake up choking, even when I haven't eaten or had anything for a few hours before bed. I have scheduled a treatment for next week. The only symptom I don't share with other correspondents is weight loss. I am overweight and really need to lose, but obviously I must be getting through enough high calorie stuff to maintain my bulk! It doesn't seem to matter what food I eat, sometimes I can eat anything, other times a lettuce leaf or even a sip of water will set it off for hours.

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Comment from: Anali, 55-64 Female (Patient) Published: December 04

I suffered from achalasia for the last 25 years. It took me a year to find a surgeon who could perform the surgery to treat it. It has been almost four years after my surgery, and I can now eat without pain, choking or vomiting. My only problem now is mild acid reflux that I did not have before my surgery.

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Comment from: Ringle, 35-44 Female (Patient) Published: June 10

I was diagnosed with a acalasha at the age of 13. I remember my younger years with many stomach aches and vomiting. By the time I was 12 my mum knew their was something really wrong. I was losing weight fast and so tired all the time. I would get lot of pain I'm my chest with pain shooting out my shoulders. Sometimes I would pass out from the pain. So many tests later and being wrongly diagnosed with anorexia I was finally operated on as by this stage I could not swallow water and all I did was sleep. I was great for six months then the symptoms started again. So I had to be operated on again twelve months later. I am now 40 and happily married with two beautiful children. The last five years I have been suffering with a lot of pain again and chocking In my sleep. So the tests start again. Looks like I have formed a hernia which is starting to interfere with my food going to my stomach. Looks like a operation is going to be done again. Hoping after this lot of surgery that my energy for my life will return. So here we go again!

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Achalasia - Causes Question: What was the cause of your achalasia?
Achalasia - Symptoms Question: What symptoms did you experience with your achalasia?
Achalasia - Treatment Question: What treatment was effective for your achalasia?

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