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November 21, 2009
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Patient Discussions: Achalasia - Describe Your Experience

Achalasia - Describe Your Experience

The MedicineNet physician editors ask:

Please describe your experience with achalasia.

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Related Article: Achalasia

The following Patient Discussions have not been medically reviewed. See additional information.



Comment from: Quarlinda, 25-34 Female (Patient)

I was 25 when I was first diagnosed with achalasia. It began with difficulty swallowing and progressed to migraine headaches. My initial doctors knew right away what was happening in my esophagus and said I would be a good candidate for a Heller Myotomy with a fundoplication wrap which is a surgery to slice the sphincter muscle and wrap it around my stomach so that the sphincter remains open to allow the passage of food. While the surgery is costly, the effects are phenominal. I was a good candidate for the Heller Myotomy with fundoplication wrap because of my age, health, and active lifestyle. After three years of passing out, loosing considerable amounts of weight (down from 120 to 80 pounds and very unhealthy) and awful migraines, a gastroenterologist began with a Botox treatment that allowed me to last for two weeks. (I was too far gone for balloon dilation.) Then, I had the surgery. This surgery saved my life. I am a certified teacher, a mother, and a survivor of achalasia. While I still have the achalasia, I can now swallow and digest food because my sphincter is permanently open. I have a whole new respect for food and healthy living! Published: December 04 ::

Comment from: gus, 35-44 Female (Patient)

I was 30 years old when I was diagnosed with achalasia. I had just given birth to my first child and after a few weeks I began to have trouble swallowing and thought it was related to giving birth. After I realized the weight I was losing was not just birth weight it was due to me not being able to get my food down. Once I could not even get water down I knew there was something wrong. I was tested for different reflux and gastro problems, I was given a heart medicine that relaxed my muscle to eat but that soon no longer worked and made my skin rash. Finally, I was given a balloon dilation the first one was not large enough so I was back in. It was the 3rd dilation when a larger size was used that finally relieved me. It has now been 14 years and once in a while the symptoms occur. I drink only room temperature water because cold drinks tense up my esophagus muscle. It tends to happen with certain foods so I have my water ready at all times that I eat something. It also occurs when the kids are arguing when I am eating because it tenses my esophagus muscle. Published: February 19 ::

Comment from: bri1, 35-44 Female (Patient)

I started experiencing difficulty with swallowing about 9 years ago. I was eating a turkey sandwich and the food just got stuck in my throat. I tried swallowing water to help push the food down, but the water would come back up and I had to spit the water out. Then I would get up and walk around trying to physically move or massage the food down inside my throat. I had my esophagus stretched and I've had the 24-hour motility study done, but nothing helps. My symptoms may disappear for a few days, but they are always back. Last month, I was rushed to the ER because my food was stuck, but now I can't breathe properly when the food is stuck. There is a pain that radiates from my chest to arms and neck. It feels like a heart attack. I only felt better after I threw up about 4 times and I could breathe again. I've had a gallbladder ultrasound, and there were no gallstones. I'm waiting to find out the result of the HIDA tests where the doctors checked to see if my gallbladder is functioning or not. Published: February 19 ::

Comment from: Rzbuddz24, 25-34 Female (Patient)

I have been suffering from achalasia for two years. It started about two weeks after having my daughter. When it was triggered, I have gone days without eating or drinking anything. I went though the tests about nine months ago after being seen in the emergency room for food impaction in my esophagus. For more than a year they treated me for acid reflux, heartburn, and nausea. No one seemed to understand what I was saying. I found a great doctor at University of California, Irvine. They redid the test and recommended a Heller myotomy. I had the procedure last week. I am still in recovery with liquid diet, then pureed food, then soft foods. I am having severe heart burn about every other day, which had gone away for about eight months before the surgery. Published: January 30 ::

Comment from: 19-24 Female (Patient)

I was diagnosed with achalasia when I was 8 or 9 years old after suffering symptoms for a couple years. It started with difficulty swallowing and progressed to regurgitation, chest pain, and eventually food coming back up through my nose at night. I had two Botox injections, which helped for a year or two then finally had the Heller myotomy. I am now 23, and my food stays down, but I absolutely depend on water to swallow anything. I frequently get chest pains, which seem to be stress-induced. Published: January 30 ::

Comment from: Judog from london, 25-34 Female (Patient)

I just left the hospital this evening after having an endoscopy. I had a barium swallow also last week. The doctor that did the endoscopy really thinks I have achalasia and the bill fits because I have had this serious swallowing condition for 11 years now. I find it horribly difficult to swallow both liquids and solids. I feel an acute pain in my chest and back and I only get relief after I have taken a few sips of water. When I eat, (every single time I do) I feel the food is stuck in my throat and sometimes it feels like I can’t breathe. I need mouthfuls of water to forcefully push the food down and it takes over 20 seconds of me pushing hard, swallowing repeatedly before the food now feel likes its gone down and most times I actually hear the food drop with a thud into my stomach. Its harrowing, it feel like I am abnormal and I wonder if I can go on like this but I am glad now that a diagnosis has been made and we'd see what method of treatment and management they are willing to give me. I am sure I will get something done before January is over. Thank you for this opportunity to share my story Published: December 17 ::


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Achalasia

Swallowing problems overview

The swallowing tract extends from the mouth to the stomach. The act of swallowing normally occurs in three phases. In the first phase, food or liquid is contained in the mouth by the tongue and palate (oral cavity). This phase is the only one we can control.

The second phase of swallowing begins when the brain makes the decision to swallow. At this point, a complex series of reflexes begin. The food is thrust from the oral cavity into the throat (pharynx). At the same time, two other events occur: A muscular valve at the bottom of the pharynx opens, allowing food to enter the swallowing tube (esophagus), and other muscles close the airway (trachea) to prevent food from entering the airways. This second phase of swallowing takes less than half a second.

The third phase of swallowing begins when food enters the esophagus. The esophagus, which is about nine inches long, is a muscular tube that produces wav...

Read the Swallowing Problems article »










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