Patient Comments: Abdominal Migraines - Signs and Symptoms

What were the signs and symptoms of abdominal migraines for you or your child?

Comment from: huest, 7-12 Female (Caregiver) Published: June 14

My 10 year old has abdominal migraines. She was diagnosed in January and looking back at her journal, she started having these at age 8. The episodes lasted 3 days and are now lasting 4 days. She takes medications for cramping and nausea, but nothing takes away her pain. I am looking into an anti-anxiety medication this week. Some of her episodes have been around big events, but not all, so it is hard to pinpoint. They always start around 9 pm at night. Cyproheptadine has helped as a preventative, but this month she had three and each lasted 4 days. I am so upset. She missed 42 days of 4th grade.

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Comment from: Melba, 35-44 Female (Patient) Published: November 06

I have suffered from tummy troubles since high school. Test after test, no answers. Finally I had my gallbladder removed, no relief. It starts with belching and a foul rotten egg taste, followed by extreme abdominal pain with vomiting and diarrhea. It can last from one hour, to the longest of a few days. Our 12 year old was having the same issues and her gastrointestinal doctor said it was abdominal migraines. He called my gastroenterologist and finally I have a name for it. We both take Imitrex on the onset of symptoms, it usually helps with one dose. It doesn't prevent, but it does help the pain!

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Comment from: LISA, 3-6 Female (Caregiver) Published: March 24

My son, 5 and daughter 8, both suffer from abdominal migraines. My daughter's migraines are usually brought on by stress or excitement, for example before a school event/excursion. She will moan, have a sore belly button, vomit, and then sleep. She will be pale and lethargic. With my son however we are still trying to figure out his trigger. His behavior is similar to my daughter's, however he seems clammier but if his temperature is not up, he also may not vomit. Hope this helps.

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Comment from: Indie, 55-64 Female (Caregiver) Published: March 13

My granddaughter has stomach migraines. She first gets pain in her stomach then it escalates. We thought she was having seizures at first but then the doctor told us she was actually passing out from the pain.

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Comment from: csmom, 13-18 Female (Caregiver) Published: February 20

My daughter has suffered debilitating stomach aches for years. Her pediatrician thought it was constipation. We finally saw a pediatric gastroenterologist today. He was very thorough in his questioning of her and me. He immediately said this isn't constipation. It isn't IBS (irritable bowel syndrome). He said he thinks she's having abdominal migraines. Her dad has migraines which seems to be a key factor in diagnosing abdominal migraines. She's going to have endoscopy to rule out other things, but after reading about abdominal migraines it sounds very much like her symptoms.

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Comment from: Desmom, 13-18 Female (Caregiver) Published: September 26

My daughter would feel very nauseous, rarely vomit, sometimes had intense abdominal pain, very lethargic, wouldn't eat for days, had sunken eyes, and just very sick looking. There was nothing I could pin it to, a food, an activity, or event. She missed 2-7 days of school a month. I was devastated! It took over 3 years and many doctors, tests, and medicines until we got the diagnosis of abdominal migraine. She was given an anxiety medicine and lorazepam every 6 hours, for when she has the episodes. This was too much, she was crying, and hallucinating (high). I now give her 1/2 a pill every 12 hours. It still doesn't go away right away but it helps. It's horrible to feel so helpless when your child is sick. Still looking for a cure.

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Comment from: MN Mom, 7-12 Female (Caregiver) Published: May 09

When my daughter tells us her eyes hurt, that"s the first clue. Then she experiences cyclic vomiting for 3 to 4 hours. Once the vomiting stops, she needs to just sleep for about 4 hours. She will often shiver when she is in the vomiting stage and will cry, and gets very lethargic. She"s learned to avoid things like the merry go round, which has triggered episodes, but there are times with no obvious trigger.

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Patient Comments

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Abdominal Migraines - Diagnosis Question: Describe the process that led to a diagnosis of abdominal migraines.
Abdominal Migraines - Medications Question: What medications have been effective for your child's abdominal migraines?
Abdominal Migraines - Experience Question: Please describe your experience with abdominal migraine.
Abdominal Migraine - Treatments Question: What treatments have been effective for your child's abdominal migraines?

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